People with life-limiting conditions are some of the most vulnerable to Covid-19.
Following the UK lockdown in March 2020, hospices rapidly changed the way they worked, how they cared for people with life-limiting conditions, and how they supported families. However, little is known about how the pandemic has affected those with life-limiting conditions, or those that care for them.
The research project
This research explores the effects of changes to palliative services in response to Covid-19. Led by Dr John MacArtney from Warwick Medical School, the research team is working with hospices in Coventry and across the West Midlands.
The researchers will seek to capture the broad range of experiences of people in the region. The study uses existing data and outputs created by the hospices in response to the pandemic, as well as conducting new in-depth interviews with patients, carers, hospice staff, and with people responsible for hospice service design and provision. Find out more about the project.
"We're working with Marie Curie so that our reports can be disseminated to all those with an interest in palliative care policy and practice. But we're looking for innovative ways to present and amplify the voices and experiences of people with life-limiting conditions and their family, as well as hospice staff and service providers. We will also identify recommendations to mitigate the uneven social and healthcare impacts caused by Covid-19 on hospice service users and providers."
Dr John MacArtney
Dr MacArtney will be working with local artist Emily Warner. Emily utilises a range of media and processes, drawing heavily upon collaboration and exchange in her work. Emily's work includes digital audio-visual content, text, performance, workshops and live events.
Emily comments: " Over the recent period of global change caused by Covid-19, I have adapted my approach to accommodate remote working, both online and offline. I am currently developing works that address safety and wellbeing, through sound and space, using audio exploration and woodworking."