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Patient and Public Involvement

THE NEED FOR URGENT CARE

The need for urgent care: the perspectives and pathways of people with a long term condition.

People with long term conditions often have a significant disease burden. They may also have acute exacerbations of their condition resulting in a perceived need for urgent care, and often an unplanned hospital admission. The Department of Health (2006) wishes to develop a more integrated approach to requirements for urgent care.

Wed 29 Oct 2008, 14:56

POPPY

experiences of parents with preterm babies: identifying interventions for communication, information and support

Duration: January 2006 - July 2008

Funder: Big Lottery, £218,785

Project Team – RCN RI staff: Sophie Staniszweska, Jo Brett. External members: Mary Newburn, NCT;  Claire Pimm, BLISS; National Perinatal Epidemiology Unit, University of Oxford.

Wed 16 Jul 2008, 16:21

VIRIHP

Virtual Institute of Research in Healthcare Practice

Duration: January 2005 -July 2008 (CLOSED)

Funder: Higher Education Funding Council of England (Hefce), £427,000

Project Team – RCN RI staff: Kate Seers, Natasha Posner, Sandra Carrivick, Rachel Taylor, Lorna Henderson. External members: Richard Baker, University of Leicester; Brendan McCormack, University of Ulster; Lin Perry, City University; Ash Pandaya, Long Term Conditions Alliance; Judith Tanner, University Hospitals of Leicester; Tanya McCance, Royal Hospitals Trust, Belfast; Carole Flowers & Jane Canny, Barts & London NHS Trust.

Description: Collaborative project to enable Higher Education Institutes, NHS Trusts and patient groups to work together.

Wed 16 Jul 2008, 16:21

PPP

Paediatric Pain Profile

Duration: 2005-December 2007

Funder: Health Foundation £195,721

Project Team: RCN RI staff: Kate Seers, Sue Robertson, Tanya Smith. External members: Anne Hunt, University of Central Lancashire; Jo Rycroft-Malone, University of Bangor.

Description: Earlier research funding had been gained to develop and test this tool, which assesses pain in children with severe neurological impairment. This study now tests implementing this tool into practice.  Study completed December 2007. Final report being drafted.  Hunt A, Seers K, Goldman A, Perry L, Mastroyannopoulou K (2007) Development of the Paediatric Pain Profile, a tool to assess pain in children with severe neurological disability.  Video analysis and saliva cortisol in the everyday setting.  Journal of Pain and Symptom Management.  33(3): 276-289

Wed 16 Jul 2008, 16:20

PRIME 1

PRIME 1 (Patients and Researchers in ME/CFS)

Duration: July 2004-December 2007

Funder: GUS Charitable Trust £127,000

Project Team: RCN RI staff: Sophie Staniszweska, Kirstie Haywood

Description: The PRIME Project is a collaboration between patients, carers, researchers and service providers who share a commitment to improving our understanding of ME/CFS (Chronic Fatigue Syndrome).  Developed consensus priorities for research, an e-community and a searchable database of patient experiences.  Continues to promote shared understanding via http://www.prime-cfs.org/  

Wed 16 Jul 2008, 16:19

CARE

Patient participation in care

Duration: November 2004-November 2007

Funder: Kadoorie Centre

Project Team – RCN RI staff – Liz Tutton, Kate Seers. External members: Debbie Langstaff, John Radcliffe Hospital.

Description: Ethnographic study of staff and patients’ experiences of participation in care in a trauma unit. Participant observation and staff and patient interviews.  Completed and paper published.  Tutton E Seers K Langstaff (2008) Professional nursing culture on a trauma unit: the experiences of patients and staff. Journal of Advanced Nursing  61(2):145-153.

Wed 16 Jul 2008, 16:19

HOPE

HOPE (an exploration of hope on acute wards – trauma and stroke)

Duration: January 2007 - March 2008

Project Team – RCN RI staff – Liz Tutton. External members: Debbie Langstaff, John Radcliffe Hospital.

Description: Ethnographic study of staff and patients’ experiences of Hope in acute care.  Participant observation and staff and patient interviews.
Wed 16 Jul 2008, 16:17

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