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Working with advisory groups

How are people with learning disabilities and family carers involved in this study?

The research team work with advisory groups, and pay their members. There are some advisory groups who are people with learning disabilities. There are other advisory groups who are family carers of people with learning disabilities.

The research team talk to all of the advisory groups in each country regularly.

The advisory groups of people with learning disabilities help to design the interviews for people with learning disabilities. The advisory groups of family carers help to design the surveys for family carers and paid support staff. They all tell the research team about important questions that they want to find out about and the research team ask these questions in the interviews.

They also tell the research team how they like results to be shared.

Involving the advisory groups helps to make sure that the voices of people with learning disabilities and family carers are heard in every part of the research study.