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Data Transparency Statement

The University of Warwick is the sponsor for this study based in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. The University of Warwick will keep identifiable information about you for a minimum of 10 years after the study has finished.

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

You can find out more about how we use your information here: https://warwick.ac.uk/services/idc/dataprotection/privacynotices/researchprivacynotice

The ambulance service and hospital which treated you will collect information from you and your medical records for this research study in accordance with our instructions.

The ambulance service will use your name, NHS number, date of birth and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from the University of Warwick and regulatory organisations may look at your medical and research records to check the accuracy of the research study. The ambulance service will pass these details to the University of Warwick along with the information collected from you and your medical records. The only people in the University of Warwick who will have access to information that identifies you will be people who need to contact you to send follow-up questionnaires and to link with other datasets or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, NHS number or contact details.

The University of Warwick will collect information about you for this research study from the following sources:

  • NHS Digital (previously the Health and Social Care Information Centre)
  • The Patient Episode Database for Wales (PEDW)
  • ICNARC (Intensive Care National Audit and Research Centre)
  • NICOR (National Institute for Cardiovascular Outcomes Research)
  • NHS Blood and Transplant Registry

This information will include your name, NHS number, contact details, ethnic group, date of birth and heath information, which is regarded as a special category information. We will use this information to tell us about your stay in hospital after your cardiac arrest and any A&E or outpatient attendances since your cardiac arrest. We will also get information on survival rates from the Office for National Statistics, provided through NHS Digital.

The Ambulance Service will keep identifiable information about you from this study for a minimum of 10 years after the study has finished.

When you agree to take part in a research study, the information about your health and care may be provided to researchers running other research studies in this organisation and in other organisations. These organisations may be universities, NHS organisations or companies involved in health and care research in this country or abroad. Your information will only be used by organisations and researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research.

Your information could be used for research in any aspect of health or care, and could be combined with information about you from other sources held by researchers, the NHS or government.

Where this information could identify you, the information will be held securely with strict arrangements about who can access the information. The information will only be used for the purpose of health and care research, or to contact you about future opportunities to participate in research. It will not be used to make decisions about future services available to you, such as insurance.

Where there is a risk that you can be identified your data will only be used in research that has been independently reviewed by an ethics committee.

Further information can be found in the Frequently Asked Questions section here.