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Cerebra 1,000 Families Study

Cerebra 1,000 Families Study

Researchers at CEDAR, in collaboration with Cerebra, are exploring the experiences of families who live with a child with a learning disability in the UK through the Cerebra 1000 Families Study. As far as we know, this is the largest ever longitudinal study of families of children with learning disability in the UK, and we would like to thank all families who have taken part in the 1000 Families study so far.

The 1000 Families Study is a longitudinal study involving a large cohort of families of children with a learning disability living in the UK. The aim of the study is to explore the wellbeing of children with learning disability, siblings, caregivers, and families overall. Over 1000 families first took part between 2015 and 2017 (Wave 1). We then asked families to complete the survey again between 2018 and 2021 (Wave 2). Wave 3 is now underway, where families are asked to complete the survey again, with Wave 3 expected to continue until December 2022. Being able to follow up with as many families as possible is important, as we can explore how families experience change over time. A description of the cohort who participated in Wave 1 of the 1000 Families Study, and further details about the study, has been published and is freely available – it can be found here.

This research will further our understanding of what it is like to raise a child with a learning disability in the UK and will help shape future support for families and children.

If you participated in a previous wave of the 1000 Families Study, please keep an eye on your email as you will be receiving an invitation to take part in Wave 3 this year (if you gave permission for us to contact you during Wave 2). Primary caregivers will be offered a £10 voucher to say thank you for taking part.

We will provide information about the results of the research on the CEDAR website, through the Cerebra website, and through our social media pages. You may opt to follow us on Twitter (@Family_RG1) and/or Facebook (www.facebook.com/FamilyRG1) to keep up-to-date with the research. You can also sign up for our Family Research newsletter below, as well as view our previous newsletters.

We would like to take this opportunity to say a huge thank you to all the families that have taken part in the 1000 Families Study so far. Being able to follow up with as many families as possible is important as this will allow us to begin answering questions about how experiences at one point of time can affect experiences at a later point. Understanding this will contribute to developing and advocating for better support for families of children with learning disabilities.

If you have any questions, please feel free to contact us at familyresearch@warwick.ac.uk. 

 

 

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