The University of Warwick is the sponsor for the CHESS Study based in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. The University of Warwick will keep identifiable information about you for a minimum of 10 years after the study has finished.

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

You can find out more about how we the University of Warwick use your information here: https://warwick.ac.uk/services/idc/dataprotection/privacynotices/researchprivacynotice

The CHESS Study team will use your name, and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study.  The only people in the University of Warwick who will have access to information that identifies you will be people who need to:

•  Provide you with information about the CHESS Study and contact you throughout your participation in the study.
• Query information provided on your completed questionnaires and to collect any missing data.
• Write to your GP to provide them with information regarding your study participation.
• To review the history of your headaches in your medical record for the 12 month period of the study from the date you are randomised.
• To contact you, after the completion of this study, to find out if you are interested in taking part in further headache research.

The people who analyse the information will not be able to identify you and will not be able to find out your name, or contact details.

The University of Warwick will collect information about you for this research study from your medical records at your GP practice, this will include health information, which is regarded as special category information. We will use this information to help us gain a picture of the care you had for your headaches during your time in the CHESS Study.

When you agreed to take part in a research study, we explained that the information about your health and care may be provided to researchers running other research studies in this organisation and in other organisations. These organisations may be universities, NHS organisations or companies involved in health and care research in this country or abroad. Your information will only be used by organisations and researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research.

 

This information will not identify you and will not be combined with other information in a way that could identify you. The information will only be used for the purpose of health and care research, and cannot be used to contact you or to affect your care. It will not be used to make decisions about future services available to you, such as insurance.

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