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CIDD

Who we are?

This guidance has been co-produced by family carers and researchers involved in the development, delivery and evaluation of support programmes for families of people with a developmental disability. Many of the topics discussed will be applicable to co-production of any kind of research. However, the content has been particularly shaped by the authors’ experience of support programme evaluation research, and so may be especially informative for others who are conducting similar research.

  • Jo Griffin, family carer and Assistant Professor, Centre for Research in Intellectual and Developmental Disabilities, University of Warwick
  • Daniel Sutherland, PhD student and Research Assistant, Centre for Research in Intellectual and Developmental Disabilities, University of Warwick
  • Debbie Austin, family carer, lived experience expert on E-PAtS and Positive Family Connections
  • Gretchen Bjornstad, SPACE, Senior Research Fellow, NIHR Applied Research Collaboration South West Peninsula (PenARC).
  • Jill Bradshaw, Professor of Communication in Intellectual and Developmental Disabilities/Consultant Speech and Language Therapist, Co-lead, Early-Positive Approaches to Support (E-PAtS)
  • Michael Charles, family carer, lived experience expert and professional facilitator on EPAtS.
  • Viv Cooper, family carer, CEO of Challenging Behaviour Foundation
  • Judith Divers, family carer, lived experience expert on E-PAtS
  • Kate Evans-Jones, family carer, lived experience expert on Healthy Parent Carers
  • Sharon Foxwell, family carer, lived experience expert on Healthy Parent Carers & SPACE project
  • Nick Gore, Reader in Intellectual and Developmental Disabilities and Lead for Early-Positive Approaches to Support (E-PAtS), Tizard Centre, University of Kent
  • Richard Hastings, Centre for Research in Intellectual and Developmental Disabilities, University of Warwick.
  • Saira Minhas, family carer, lived experience expert on Healthy Parent Carers & SPACE project
  • Ian Penfold, family carer, lived experience expert and Local Champion for the Challenging Behaviour Foundation
  • Gurdeep Singh, family carer, lived experience expert on Healthy Parent Carers & SPACE project