My research interests embrace the wide array of practical, methodological and theoretical challenges relating to patient reported outcomes, across a range of conditions and settings, including: long-term conditions (for example, rheumatology; chronic fatigue; older people), recovery from episodes of ill-health or injury (for example, traumatic hip fracture, cardiac arrest), and using patient-reported outcome measures (PROMs) in routine settings (for example, womens' health; quality in healthcare). Patient, or person, reported outcomes encompass an individual's experience or expertise about how they feel or function, with respect to their health or associated healthcare. Well-developed patient-reported outcome measures (PROMs) provide valid and reliable assessments of health and treatment outcome, informing the assessment of disease burden, healthcare evaluation, and decision-making for health professionals, managers and patients, and hence contributing significantly to health research and service provision. The appropriate selection (or where appropriate the development), implementation, analysis, interpretation, and reporting of PROMs-related data in research and increasingly in a routine practice setting presents a number of challenges for the healthcare arena. Evaluating and developing understanding around PROMs development, application and interpretation, standards for quality and acceptability, defining the opportunities and limitations of PROMs, are themes central to my research interests. We have developed significant expertise and extensive professional networks in this area over several years and we aim to continue to conduct research which focuses on developing our conceptual, theoretical and methodological understanding of how PROMs are developed, applied and evaluated.
International Society for Quality of Life Research (ISOQOL) Co-Chair of Quality of Life in Clinical Practice Special Interest Group (2011 - )
(ISOQOL) Founding Member of Patient Engagement Special Interest Group (2013 - )
(ISOQOL) Committee Member (2011 - )
Associate Editor - Quality of Life Research (2012 - )
Editorial Board Member - Musculoskeletal Care (2002 - )
I became a Senior Research Fellow (Patient Reported Outcomes) at the RCNI in November 2004, and lead on the Patient Reported Outcomes theme. Prior to this I was Co-Director of the Patient Reported Outcomes Measures Group (formerly the Patient-assessed Health Instruments Group), National Centre for Health Outcomes Development, University of Oxford, working alongside Professor Ray Fitzpatrick and Dr Andrew Garratt. I qualified as a physiotherapist in 1990 and worked in the health service for several years, specializing in rheumatology and musculoskeletal health. In 2000 I graduated from the University of York with a doctorate in Health Sciences and Clinical Evaluation, focusing on health outcomes in Ankylosing Spondylitis (AS). As part of this research I developed an individualized measure for the assessment of health-related quality of life (Patient Generated Index Ankylosing Spondylitis).
- 'Pearson, Nathan Ashley, 'Tutton, Elizabeth, 'Martindale, J., 'Strickland, George, 'Thompson, Jean, 'Packham, Jonathan C., 'Creamer, Paul, 'Haywood, Kirstie L., 2022. 'Qualitative interview study exploring the patient experience of living with axial spondyloarthritis and fatigue : difficult, demanding and draining. BMJ Open, 12 (2)
- 'Haywood, Kirstie L., 'Southern, Charlotte, 'Tutton, Elizabeth, 'Swindell, Paul, 'Ellard, David R., 'Pearson, Nathan A., 'Parsons, Helen, 'Couper, Keith, 'Dainty, Katie N., 'Agarwal, Sachin, 'Perkins, Gavin D., 2022. 'An international collaborative study to co-produce a patient-reported outcome measure of cardiac arrest survivorship and health-related quality of life (CASHQoL) : a protocol for developing the long-form measure.. Resuscitation Plus, 11
- Topijian, Alexis, Scholefield, Barnaby, Pinto, Neethi, Fink, Ericka, Buysse, Corinne, Haywood, Kirstie L., Maconochie, Ian, Nadkarni, Vinay, de Caen, Allan, Escalante-Kanashiro, Raffo, Ng, Kee-Chong, Nuthall, Gabrielle, Reis, Amelia, Van de Voorde, Patrick, Suskauer, Stacy, Schexnayder, Steven, Hazinski, Mary Fran, Slomine, Beth, 2021. P-COSCA (Pediatric Core Outcome Set for Cardiac Arrest) in children : an advisory statement from the International Liaison Committee on Resuscitation. Circulation, 142 (16), pp. e246-e261
- Haywood, Kirstie L., Potter, Rachel, Froud, Robert J., Pearce, Gemma, Box, Barbara, Muldoon, Lynne, Lipton, Richard, Petrou, Stavros, Rendas-Baum, R., Logan, A., Stewart, Kimberley, Underwood, Martin, Matharu, Manjit, 2021. A core outcome set for preventive intervention trials in chronic and episodic migraine (COSMIG) : an international, consensus-derived and multi-stakeholder initiative. BMJ Open, 11
- 'Haywood, Kirstie L., 'Achana, Felix A., 'Nichols, Vivien P., 'Pearce, G. F., 'Box, B., 'Muldoon, L., 'Patel, Shilpa, 'Griffiths, Frances, 'Stewart, Kimberley, 'Underwood, M., 'Matharu, M., 2021. 'Measuring heath-related quality of life in chronic headache : a comparative evaluation of the Chronic Headache Quality of Life Questionnaire and Headache Impact Test (HIT-6). Cephalalgia, 41 (10), pp. 1100-1123
- Nichols, Vivien P., Pearce, Gemma, Ellard, David R., Evans, Simon, Haywood, Kirstie L., Norman, Chloe, Potter, Rachel, Sandhu, Harbinder, Stewart, Kimberley, Underwood, Martin, Patel, Shilpa, 2021. Patient and public involvement in a UK National Institute for Health Research Programme Grant for Applied Research : experiences from the Chronic Headache Education and Self-management Study (CHESS). Primary Health Care Research & Development, 22
- Pearson, Nathan, Tutton, Elizabeth, Joeris, A., Gwilym, S., Grant, R., Keene, D. J., Haywood, Kirstie L., 2021. Co-producing a multi-stakeholder core outcome set for distal tibia and ankle fractures (COSTA) : a study protocol. Trials, 22
- 'Nolan, Jerry P., 'Sandroni, Claudio, 'B?ttiger, Bernd W., 'Cariou, Alain, 'Cronberg, Tobias, 'Friberg, Hans, 'Genbrugge, Cornelia, 'Haywood, Kirstie L., 'Lilja, Gisela, 'Moulaert, V?ronique R. M., 'Nikolaou, Nikolaos, 'Mariero Olasveengen, Theresa, 'Skrifvars, Markus B., 'Taccone, Fabio, 'Soar, Jasmeet, 2021. 'European Resuscitation Council and European Society of Intensive Care Medicine guidelines 2021 : post-resuscitation care. Resuscitation, 161, pp. 220-269
- 'Perkins, Gavin D., 'Callaway, Clifton W., 'Haywood, Kirstie L., 'Neumar, Robert W, 'Lilja, Gisela, 'Rowland, Matthew J., 'Sawyer, Kelly N., 'Skrifvars, Markus B., 'Nolan, Jerry P., 2021. 'Brain injury after cardiac arrest. The Lancet, 398 (10307), pp. 1195-1278
- Calvert, Melanie, King, Madeleine, Mercieca-Bebber, Rebecca, Aiyegbusi, Olalekan, Kyte, Derek, Slade, Anita, Chan, An-Wen, Basch, E, Bell, Jill, Bennett, Antonia, Bhatnagar, Vishal, Blazeby, Jane, Bottomley, Andrew, Brown, Julia, Brundage, Michael, Campbell, Lisa, Cappelleri, Joseph C, Draper, Heather, Dueck, Amylou C, Ells, Carolyn et al (Select to open full list), 2021. SPIRIT-PRO Extension explanation and elaboration : guidelines for inclusion of patient-reported outcomes in protocols of clinical trials. BMJ Open, 11 (6)
- Parslow, Roxanne M., Anderson, N., Byrne, D., Haywood, Kirstie L., Shaw, A., Crawley, E., 2020. Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) : prioritisation through card ranking.. Quality of Life Research, 29, pp. 1169-1181
- Patel, Shilpa, Achana, Felix A., Carnes, Dawn, Eldridge, Sandra, Ellard, David R., Griffiths, Frances, Haywood, Kirstie L., Hee, Siew Wan, Mistry, Dipesh, Mistry, Hema, Nichols, Vivien P., Petrou, Stavros, Pincus, Tamar, Potter, Rachel, Sandhu, Harbinder, Stewart, Kimberley, Taylor, Stephanie, Underwood, Martin, Matharu, Manjit, 2020. Usual care and a self-management support programme versus usual care and a relaxation programme for people living with chronic headache disorders : a randomised controlled trial protocol (CHESS). BMJ Open, 10 (4)
- Froud, Robert, Grant, Mary, Burton, Kim, Foss, Jonathan G. K., Ellard, David R., Seers, Kate, Smith, Deb, Barillec, Marianna, Patel, Shilpa, Haywood, Kirstie L., Underwood, Martin, 2020. Development and feasibility of an intervention featuring individual supported work placements to aid return-to-work for unemployed people living with chronic pain. Pilot and Feasibility Studies, 6
- Whitehead, Laura, Tierney, Stephanie, Biggerstaff, Deborah, Perkins, Gavin D., Haywood, Kirstie L., 2020. Trapped in a disrupted normality : survivors' and partners' experiences of life after a sudden cardiac arrest. Resuscitation, 147, pp. 81-87
- Parslow, Roxanne M, Shaw, Alison, Haywood, Kirstie L., Crawley, Esther, 2019. Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME) : cognitive interviews with children. Journal of Patient Reported Outcomes, 3
- Sandhu, Harbinder K., Abraham, Charles, Alleyne, Sharisse, Balasubramanian, Shyam, Betteley, Lauren, Booth, Katie, Carnes, Dawn, Furlan, Andrea D., Haywood, Kirstie L., Iglesias Urrutia, Cynthia Paola, Lall, Ranjit, Manca, Andrea, Mistry, Dipesh, Nichols, Vivien P., Noyes, Jennifer, Rahman, Anisur, Seers, Kate, Shaw, Jane, Tang, Nicole K. Y., Taylor, Stephanie J. C. et al (Select to open full list), 2019. Testing a support programme for opioid reduction for people with chronic non-malignant pain : the I-WOTCH randomised controlled trial protocol. BMJ Open, 9 (8)
- Haywood, Kirstie L., 2019. Survival and quality of life following a cardiac arrest: Capturing what really matters to survivors. Resuscitation, 135, pp. 221-223
- White, Kimberley, Potter, Rachel, Patel, Shilpa, Nichols, Vivien P., Haywood, Kirstie L., Hee, Siew Wan, Mistry, Dipesh, Carnes, Dawn, Taylor, Stephanie S. J., Underwood, Martin, Matharu, Manjit S., 2019. Chronic headache education and self-management study (CHESS) - a mixed method feasibility study to inform the design of a randomised controlled trial. BMC Medical Research Methodology, 19
- Chan, Eric, Edwards, Todd, Haywood, Kirstie L., Milkes, Sean, Humphrey, Louise, 2019. Implementing patient-reported outcome measures in clinical practice : a companion guide to the ISOQOL user's guide. Quality of Life Research, 28, pp. 621-627
- Haywood, Kirstie L., Whitehead, Laura, Perkins, Gavin D., 2019. An international, consensus-derived Core Outcome Set for Cardiac Arrest effectiveness trials. Current Opinion in Critical Care, 25 (3), pp. 226-233
- Schlussel, Michael M, Keene, David J, Collins, Gary S, Bostock, Jennifer, Byrne, Christopher, Goodacre, Steve, Gwilym, Stephen, Hagan, Daryl A, Haywood, Kirstie, Thompson, Jacqueline, Williams, Mark A, Lamb, Sarah E, 2018. Development and prospective external validation of a tool to predict poor recovery at 9 months after acute ankle sprain in UK emergency departments: the SPRAINED prognostic model. BMJ Open, 8 (11)
- Haywood, Kirstie L., Whitehead, Laura, Nadkarni, Vinay M., Achana, Felix A., Beesems, Stefanie, Böttiger, Bernd W., Brooks, Anne, Castrén, Maaret, Ong, Marcus E. H., Hazinski, Mary Fran, Koster, Rudolph W., Lilja, Gisela, Long, John, Monsieurs, Koenraad G., Morley, Peter T., Morrison, Laurie, Nichol, Graham, Oriolo, Valentino, Saposnik, Gustavo, Smyth, Michael A. et al (Select to open full list), 2018. COSCA (Core Outcome Set for Cardiac Arrest) in adults : an advisory statement from the International Liaison Committee on Resuscitation. Circulation, 137 (22), pp. e783-e801
- Pearson, Nathan, Packham, Jonathan C., Parsons, Helen, Haywood, Kirstie L., 2018. Quality and acceptability of patient-reported outcome measures used to assess fatigue in axial spondyloarthritis (axSpA) : a systematic review (protocol). Systematic Reviews, 7 (1)
- Haywood, Kirstie L., Mars, Tom S., Potter, Rachel, Patel, Shilpa, Matharu, Manjit, Underwood, Martin, 2018. Assessing the impact of headaches and the outcomes of treatment : a systematic review of patient-reported outcome measures (PROMs). Cephalalgia, 38 (7), pp. 1374-1386
- Bailey, Daniel L., Holden, Melanie A., Foster, Nadine E., Quicke, Jonathan G., Haywood, Kirstie L., Bishop, Annette, 2018. Defining adherence to therapeutic exercise for musculoskeletal pain : a systematic review. British Journal of Sports Medicine
- Keene, David J., Schlüssel, Michael M., Thompson, Jacqueline, Hagan, Daryl A., Williams, Mark A., Byrne, Christopher, Goodacre, Steve, Cooke, Matthew, Gwilym, Stephen, Hormbrey, Philip, Bostock, Jennifer, Haywood, Kirstie L., Wilson, David, Collins, Gary S., Lamb, S. E. (Sallie E.), 2018. Prognostic models for identifying risk of poor outcome in people with acute ankle sprains : the SPRAINED development and external validation study. Health Technology Assessment, 22 (64), pp. 1-112
- Haywood, Kirstie L., Pearson, Nathan, Morrison, Laurie J., Castrén, Maaret, Lilja, Gisela, Perkins, Gavin D., 2018. Assessing Health-related Quality of Life (HRQoL) in Survivors of Out-of-Hospital Cardiac Arrest : a systematic review of patient-reported outcome measures. Resuscitation, 123, pp. 22-37
- Macfarlane, Gary J, MacDonald, Ross I R, Pathan, Ejaz, Siebert, Stefan, Gaffney, Karl, Choy, Ernest, Packham, Jon, Martin, Kathryn R, Haywood, Kirstie L., Sengupta, Raj, Atzeni, Fabiola, Jones, Gareth T, 2018. Influence of co-morbid fibromyalgia on disease activity measures and response to tumour necrosis factor inhibitors in axial spondyloarthritis: results from a UK national register. Rheumatology, 57 (11), pp. 1982-1990
- Pearson, Nathan, Packham, Jonathan, Tutton, Elizabeth, Parsons, Helen, Haywood, Kirstie L., 2018. Assessing fatigue in adults with Axial Spondyloarthritis : a systematic review of the quality and acceptability of patient-reported outcome measures. Rheumatology Advances in Practice, 2 (2)
- Macfarlane, Gary J., MacDonald, Ross I. R., Pathan, Ejaz, Siebert, Stefan, Gaffney, Karl, Choy, Ernest, Packham, Jon, Martin, Kathryn R., Haywood, Kirstie L., Sengupta, Raj, Atzeni, Fabiola, Jones, Gareth T., 2018. Influence of co-morbid fibromyalgia on disease activity measures and response to TNF inhibitors in axial spondyloarthritis : results from a UK national register. Rheumatology, 57 (11), pp. 1982-1990
- Small, C., Kemp, H., Haywood, K. L., Srivastava, D., 2018. Current variation in the practice of measuring post-operative pain outcomes: time for a national consensus?. British Journal of Anaesthesia, 120 (5), pp. e10-e11
- Haywood, Kirstie L., Whitehead, Laura, Nadkarni, Vinay M., Achana, Felix A., Beesems, Stefanie, Böttiger, Bernd W. B, Brooks, Anne, Castrén, Maaret, Ong, Marcus E.H., Hazinski, Mary Fran, Koster, Rudolph W., Lilja, Gisela, Long, John, Monsieurs, Koenraad G., Morley, Peter, Morrison, Laurie, Nichol, Graham, Oriolo, Valentino, Saposnik, Gustavo, Smyth, Mike et al (Select to open full list), 2018. Core Outcome Set for Cardiac Arrest (COSCA) in adults : an advisory statement from the International Liaison Committee on Resuscitation. Resuscitation, 127, pp. 147-163
- Ellard, David R., Underwood, Martin, Achana, Felix A., Antrobus, James H. L., Balasubramanian, Shyam, Brown, Sally, Cairns, Melinda, Griffin, James M., Griffiths, Frances, Haywood, Kirstie L., Hutchinson, Charles E., Lall, Ranjit, Petrou, Stavros, Stallard, Nigel, Tysall, Colin, Walsh, David A., Sandhu, Harbinder, 2017. Facet joint injections for people with persistent non-specific low back pain (Facet Injection Study) : a feasibility study for a randomised controlled trial. Health Technology Assessment, 21 (30), pp. 1-184
- Haywood, Kirstie L., Lyddiatt, Anne, Brace-McDonnell, Samantha J., Staniszewska, Sophie, Salek, Sam, 2017. Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research : an international, multiple-stakeholder perspective. Quality of Life Research, 26 (6), pp. 1393-1404
- Parslow, Roxanne M, Harris, Sarah, Broughton, Jessica, Alattas, Adla, Crawley, Esther, Haywood, Kirstie L., Shaw, Alison, 2017. Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : a systematic review and meta-ethnography of qualitative studies. BMJ Open, 7 (1)
- Haywood, Kirstie L., Brett, Jo, Tutton, Elizabeth, Staniszewska, Sophie, 2017. Patient-reported outcome measures in older people with hip fracture : a systematic review of quality and acceptability. Quality of Life Research, 26 (4), pp. 799-812
- Kirwan, John R., de Wit, Maarten, Frank, Lori, Haywood, Kirstie L., Salek, Sam, Brace-McDonnell, Samantha J., Lyddiatt , Anne, Barbic, Skye P., Alonso, Jordi, Guillemin, Francis, Bartlett, Susan J., 2017. Emerging guidelines for patient engagement in research. Value in Health, 20 (3), pp. 481-486
- McLean, Sionnadh, Holden, Melanie A., Potia, Tanzila, Gee, Melanie, Mallett, Ross, Bhanbhro, Sadiq, Parsons, Helen, Haywood, Kirstie L., 2017. Quality and acceptability of measures of exercise adherence in musculoskeletal settings : a systematic review. Rheumatology, 56 (3), pp. 426-438
- Ji, Chen, Lall, Ranjit, Quinn, T., Kaye, Charlotte, Haywood, Kirstie L., Horton, Jessica, Gordon, Victoria, Deakin, C. D., Pocock, H., Carson, A., Smyth, Michael A., Rees, N., Kyee, Han, Byers, S., Brace-McDonnell, Samantha J., Gates, Simon, Perkins, Gavin D., 2017. Post-admission outcomes of participants in the PARAMEDIC trial : a cluster randomised trial of mechanical or manual chest compressions. Resuscitation, 118, pp. 82-88
- Parslow, Roxanne M, Shaw, Alison, Haywood, Kirstie L., Crawley, Esther, 2017. Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : perspectives of health professionals from specialist services. BMC Pediatrics, 17 (43)
- Parslow, Roxanne M., Shaw, Alison, Haywood, Kirstie L., Crawley, Esther, 2017. Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : perspectives of health professionals from specialist services. BMC Pediatrics, 17 (1)
- Mentzelopoulos, Spyros D., Bossaert, Leo, Raffay, Violetta, Askitopoulou, Helen, Perkins, Gavin D., Greif, Robert, Haywood, Kirstie L., Van de Voorde, Patrick, Xanthos, Theodoros, 2016. A survey of key opinion leaders on ethical resuscitation practices in 31 European Countries. Resuscitation, 100, pp. 11-7
- Kyte, Derek, Reeve, Bryce B., Efficace, Fabio, Haywood, Kirstie L., Mercieca-Bebber, Rebecca, King, Madeleine T., Norquist, Josephine M., Lenderking, William R., Snyder, Claire, Ring, Lena, Velikova, Galina, Calvert, Melanie, 2016. International Society for Quality of Life Research commentary on the draft European Medicines Agency reflection paper on the use of patient-reported outcome (PRO) measures in oncology studies. Quality of Life Research, 25 (2), pp. 359-62
- Haywood, Kirstie L., Wilson, Roger, Staniszewska, Sophie, Salek, Sam, 2016. Using PROMs in healthcare. Who should be in the driving seat - policy makers, health professionals, methodologists or patients?. Patient: Patient-Centered Outcomes Research, 9 (6), pp. 495-498
- Sandhu, Harbinder, Ellard, David R., Achana, Felix A., Antrobus, James H. L., Balasubramanian, Shyam, Brown, Sally, Cairns, Melinda, Griffiths, Frances, Haywood, Kirstie L., Hutchinson, Charles E., Lall, Ranjit, Petrou, Stavros, Stallard, Nigel, Tysall, Colin, Walsh, David A., Underwood, Martin, 2015. Facet-joint injections for people with persistent non-specific low back pain (FIS) : study protocol for a randomised controlled feasibility trial. Trials, 16 (1)
- Potgieter, Roxanne, Patel, Aarti, Beasant, Lucy, Haywood, Kirstie L., Johnson, Debbie, Shaw, Alison, Crawley, Esther, 2015. Complexity, context and considerations for treatment in CFS/ME : children's versus health professional?s conceptual model. Trials, 16 (Supplement 1)
- Haywood, Kirstie L., Brett, Jo, Salek, Sam, Marlett, Nancy, Penman, Colin, Shklarov, Svetlana, Norris, Colleen, Santana, Maria Jose, Staniszewska, Sophie, 2015. Patient and public engagement in health-related quality of life and patient-reported outcomes research : what is important and why should we care? Findings from the first ISOQOL patient engagement symposium.. Quality of Life Research, 24 (5), pp. 1069-76
- Griffiths, Frances, Mason, Victoria, Boardman, Felicity K., Dennick, Kathryn J., Haywood, Kirstie L., Achten, Juul, Parsons, Nicholas R., Griffin, Xavier L., Costa, Matthew L., 2015. Evaluating recovery following hip fracture : a qualitative interview study of what is important to patients. British Medical Journal, 5 (1), pp. 1-10
- Parslow, Roxanne, Patel, Aarti, Beasant, Lucy, Haywood, Kirstie L., Johnson, Debbie, Crawley, Esther, 2015. What matters to children with CFS/ME? A conceptual model as the first stage in developing a PROM. Archives of Disease in Childhood, 100 (12), pp. 1141-1147
- Mars, Tom S., Ellard, David R., Antrobus, James H. L., Cairns, Melinda, Underwood, Martin, Haywood, Kirstie L., Keohane, Susie, Sandhu, Harbinder, Griffiths, Frances, 2015. Intra-articular facet injections for low back pain : design considerations, consensus methodology to develop the protocol for a randomised controlled trial. Pain Physician, 18 (5), pp. 473-493
- Bossaert, Leo L., Perkins, Gavin D., Askitopoulou, Helen, Raffay, Violetta I., Greif, Robert, Haywood, Kirstie L., Mentzelopoulos, Spyros D., Nolan, Jerry P., Van de Voorde, Patrick, Xanthos, Theodoros T., 2015. European Resuscitation Council Guidelines for Resuscitation 2015 : Section 11. The ethics of resuscitation and end-of-life decisions. Resuscitation, 95, pp. 302-11
- Holden, Melanie A., Haywood, Kirstie L., Potia, Tanzila A., Gee, Melanie, McLean, Sionnadh, 2014. Recommendations for exercise adherence measures in musculoskeletal settings : a systematic review and consensus meeting (protocol). Systematic Reviews, 3 (1)
- Haywood, Kirstie L., Collin, S. M., Crawley, E., 2014. Assessing severity of illness and outcomes of treatment in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) : a systematic review of patient-reported outcome measures (PROMs). Child: Care, Health and Development, 40 (6), pp. 806-24
- Haywood, Kirstie L., Packham, Jonathan C., Jordan, Kelvin P., 2014. Assessing fatigue in ankylosing spondylitis : the importance of frequency and severity. Rheumatology, 53 (3), pp. 552-556
- Haywood, Kirstie L., Whitehead, Laura, Perkins, Gavin D., 2014. The psychosocial outcomes of cardiac arrest : relevant and robust patient-centred assessment is essential. Resuscitation, 85 (6), pp. 718-9
- Haywood, Kirstie L., Griffin, Xavier L., Achten, Juul, Costa, Matthew L., 2014. Developing a core outcome set for hip fracture trials. The Bone & Joint Journal, 96-B (8), pp. 1016-1023
- Whitehead, Laura, Perkins, Gavin D., Clarey, Andrew, Haywood, Kirstie L., 2013. A systematic review of the outcomes reported in cardiac arrest clinical trials : the need for a core outcome set. Resuscitation, 88 (Supplement 1), pp. 150-7
- Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, J. C., 2013. Patients with well-established Ankylosing Spondylitis show limited deterioration in a ten-year prospective cohort study. Clinical Rheumatology, volume 32 (1), pp. 67-72
- Haywood, Kirstie L., Staniszewska, Sophie, Chapman, Sarah, 2012. Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : a systematic review. Quality of Life Research, Vol.21 (No.1), pp. 35-52
- Packham, J. C., Jordan, Kelvin, Haywood, Kirstie L., Garratt, Andrew M., Healey, E. L., 2012. Evaluation of Ankylosing Spondylitis quality of life questionnaire : responsiveness of a new patient-reported outcome measure. Rheumatology, Vol.51 (No.4), pp. 707-714
- Rafia, Rachid, Ara, Roberta, Packham, Jon, Haywood, Kirstie L., Healey, Emma, 2012. Healthcare costs and productivity losses directly attributable to ankylosing spondylitis. Clinical and Experimental Rheumatology, 30 (2), pp. 246-53
- Staniszewska, Sophie, Haywood, Kirstie L., Brett, Jo, Tutton, Liz, 2012. Patient and public involvement in patient-reported outcome measures. Patient: Patient-Centered Outcomes Research, Vol.5 (No.2), pp. 79-87
- Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, Jonathan C., 2011. Impact of ankylosing spondylitis on work in patients across the UK. Scandinavian Journal of Rheumatology, 40 (1), pp. 34-40
- Staniszewska, Sophie, Adebajo, Ade, Barber, Rosemary, Beresford, Peter, Brady, Louca-Mai, Brett, Jo, Elliott, J., Evans, David, Haywood, Kirstie L., Jones, D., Mockford, Carole, Nettle, Mary, Rose, Diana, Williamson, Tracey, 2011. Developing the evidence base of patient and public involvement in health and social care research : the case for measuring impact. International Journal of Consumer Studies, 35 (6), pp. 628-632
- Sandhu, J., Packham, Jonathan C., Healey, Emma L., Jordan, Kelvin, Garratt, Andrew M., Haywood, Kirstie L., 2011. Evaluation of a modified arthritis self-efficacy scale for an ankylosing spondylitis UK population. Clinical and Experimental Rheumatology, 29 (2), pp. 223-230
- Healey, E. L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, J. C., 2010. Disease severity in ankylosing spondylitis : variation by region and local area deprivation. Journal of Rheumatology, Vol.37 (No.3), pp. 633-638
- Haywood, Kirstie L., Garratt, Andrew M., Jordan, Kelvin, Healey, Emma L., Packham, Jonathan C., 2010. Evaluation of ankylosing spondylitis quality of life (EASi-QoL): reliability and validity of a new patient-reported outcome measure. Journal of Rheumatology, Vol.37 (No.10), pp. 2100-2109
- Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Ryan, Sarah, Packham, Jon C., 2009. Ankylosing spondylitis and its impact on sexual relationships. Rheumatology, Vol.48 (No.11), pp. 1378-1381
- Haywood, Kirstie L., Garratt, Andrew M., Carrivick, Sandra, Mangnall, Joanne, Skevington, Suzanne M., 2009. Continence specialists use of quality of life information in routine practice: a national survey of practitioners. Quality of Life Research, Vol.18 (No.4), pp. 423-433
- Ara, R. M., Packham, J. C., Haywood, Kirstie L., 2008. The direct healthcare costs associated with ankylosing spondylitis patients attending a UK secondary care rheumatology unit. Rheumatology, Vol. 47 (No. 1), pp. 68-71
- Haywood, Kirstie L., Garratt, Andrew M., Lall, Ranjit, Smith, Jan Fereday, Lamb, S. E. (Sallie E.), 2008. EuroQol EQ-5D and condition-specific measures of health outcome in women with urinary incontinence : reliability, validity and responsiveness. Quality of Life Research, 17 (3), pp. 475-483
- Haywood, Kirstie L., 2010. Patient Reported Outcomes in the Rheumatic Diseases. Dziedzic, Krysia; Hammond, Alison (eds.), Rheumatology : evidence-based practice for physiotherapists and occupational therapists, Edinburgh, Churchill Livingstone
- Seers, Kate, Tutton, Liz, Tierney, Stephanie, Mockford, Carole, Staniszewska, Sophie, Haywood, Kirstie L., 2016. Knowledge for change and improvement : developing partnership through involving and engaging others. RCN International Centenary conference, QEII Centre, 22?23 Nov 2016
- Underwood, Martin, Antrobus, James H. L., Barkan, Kerry, Cairns, M., Ellard, David R., Griffiths, Frances, Haywood, Kirstie L., Keohane, S., Lega, C., Mars, Tom S., Sandhu, Harbinder, Stallard, Nigel, 2014. Facet-joint injections for people with persistent non-specific low back pain (FIS). Facet Injection Study Consensus Conference (FISCC), University of Warwick, UK, 27 Jun 2014
- Packham, Jon, Jordan, Kelvin, Lebmeier, Max, Garratt, Andrew M., Healey, Emma L., Haywood, Kirstie L., 2010. Responsiveness of the evaluating ankylosing spondylitis quality of life (EASI-QOL) questionnaire. Annual Meeting of the British Society of Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Birmingham, England, April 21-23, 2010, Published in Rheumatology, pp. I57-I58
- Sandhu, Jaswant, Packham, Jon C., Healey, Emma L., Jordan, Kelvin, Garratt, Andrew M., Haywood, Kirstie L., 2010. Evaluation of a modified arthritis self-efficacy scale for ankylosing spondylitis (ASES-AS). Annual Meeting of the British Society of Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Birmingham, England, April 21-23, 2010, Published in Rheumatology, pp. I53-I53
- Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, Jonathan C., 2010. Patients with well-established ankylosing spondylitis show limite deterioration in a 10-year prospective cohort study. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British-Health-Professional-in-Rheumatology, Birmingham, England, April 21-23, 2010, Published in Rheumatology, pp. I20-I20
- Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, Jon C., 2009. The effect of social deprivation in ankylosing spondylitis. Annual Meeting of the British Society of Rheumatology, Glasgow, Scotland, April 28-May 01, 2009, Published in Rheumatology, pp. I8-I8
- Haywood, Kirstie L., Garratt, Andrew M., Healey, Emma L., Jordan, Kelvin, Packham, Jon C., 2009. Evaluating ankylosing spondylitis quality of life (EASi-QoL): reliability and validity of a new patient reported outcome measure. Annual Meeting of the British-Society-of-Rheumatology, Glasgow, Scotland, April 28-May 01, 2009, Published in Rheumatology, pp. I7-I8
- Healey, Emma L., Haywood, Kirstie L., Packham, Jonathan C., 2008. Anti-TNF eligibility & treatment in a large cohort of patients with ankylosing spondylitis across the United Kingdom. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Liverpool, England, Apr 22-25, 2007, Published in Rheumatology, pp. II70-II70
- Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Packham, Jonathan C., 2008. Prevalence, gender differences and factors associated with anxiety and depression in a large cohort of patients with ankylosing spondylitis from across the United Kingdom. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Liverpool, England, Apr 22-25, 2007, Published in Rheumatology, pp. II78-II78
- Healey, Emma L., Haywood, Kirstie L., Packham, Jonathan C., 2008. Work status in a large cohort of ankylosing spondylitis patients from across the United Kingdom. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Liverpool, England, Apr 22-25, 2007, Published in Rheumatology, pp. II74-II74
- Bossaert, Leo L., Perkins, Gavin D., Askitopoulou, Helen, Raffay, Violetta I., Greif, Robert, Haywood, Kirstie L., Mentzelopoulos, Spyros D., Nolan, Jerry P., Van de Voorde, Patrick, Xanthos, Theodoros T., 2016. Reply to letter : Family presence during cardiopulmonary resuscitation : evidence-based guidelines?. Resuscitation, pp. e7-e8
- Whitehead, L., Perkins, G. D., Haywood, K. L., 2015. What is important to cardiac arrest survivors? A qualitative exploration of outcomes. Quality of Life Research, Springer Netherlands, pp. 151-152
Title | Funder | Award start | Award end |
---|---|---|---|
Measuring fatigue in Axial Spondyloarthritis (axSpA): refinement, application and evaluation of a new electronic patient-reported outcome measure (the Warwick Axial Spondyloarthritis Fatigue and Energy questionnaire (e-WASTEd)) in rheumatology clinical practice. | National Institute for Health Research (NIHR DoH) | 01 Aug 2022 | 31 Jul 2024 |
WCPRS Studentship - Improving the assessment of Health-Related Quality of Life (HRQoL) for survivors of cardiac arrest C Southern | University Hospitals Birmingham NHS Foundation Trust | 02 Mar 2020 | 01 Sep 2023 |
Developing a quality of life instrument for Cardiac Arrest survivors: understanding what matters to patients - related to WCPRS PhD Studentship (66086) | Resuscitation Council (UK) | 01 Sep 2020 | 31 Aug 2022 |
Public Involvement Fund (linked to 72495) | National Institute for Health Research (NIHR DoH) | 01 Oct 2021 | 31 May 2022 |
Towards a Core Outcome Set for Tibia and Ankle Fractures (COS-TAF) | AO Foundation | 01 Oct 2019 | 31 Mar 2022 |
Public Involvement Fund | National Institute for Health Research (NIHR DoH) | 04 Oct 2021 | 10 Nov 2021 |
Fatigue and Ankylosing Spondylitis: improving patient reported outcomes | National Ankylosing Spondylitis Society | 01 Oct 2015 | 30 Apr 2021 |
PGfAR Full application: Chronic Headache Educations and Self-management Study (CHESS): Resubmission | National Institute for Health Research (DoH) | 05 Jan 2015 | 31 Oct 2020 |
Improving the wellbeing of people with Opioid treated chronic pain: I-WOTCH | National Institute for Health Research (DoH) | 01 Sep 2016 | 30 Nov 2019 |
Development of Individual Supported Employment work-placements to Improve the health-related Quality of Life of people with chronic pain who are unemployed (ISEIQoL)- ARUK | Arthritis Research UK | 02 Jan 2017 | 30 Apr 2019 |
Ankylosing spondylitis (PhD) | Staffordshire and Stoke on Trent Partnership Trust | 01 Jan 2015 | 31 Dec 2017 |
Strategic alliance agreement - Royal College of Nursing | Royal College of Nursing | 01 Aug 2012 | 31 Jul 2017 |
REVISED SUBMISSION - NIHR HTA Feasability study 11/31 - Facet Joints | National Institute for Health Research (DoH) | 01 Jul 2013 | 30 Jun 2015 |
Recommendations for exercise adherence measures: findings from a systematic review and consenus workshop. | Chartered Society of Physiotherapy | 01 Sep 2013 | 31 Aug 2014 |