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Kirstie Haywood


Job Title
WMS - Health Sciences
024 761 50616
Research Interests

My research interests embrace the wide array of practical, methodological and theoretical challenges relating to patient reported outcomes, across a range of conditions and settings, including: long-term conditions (for example, rheumatology; chronic fatigue; older people), recovery from episodes of ill-health or injury (for example, traumatic hip fracture, cardiac arrest), and using patient-reported outcome measures (PROMs) in routine settings (for example, womens' health; quality in healthcare). Patient, or person, reported outcomes encompass an individual's experience or expertise about how they feel or function, with respect to their health or associated healthcare. Well-developed patient-reported outcome measures (PROMs) provide valid and reliable assessments of health and treatment outcome, informing the assessment of disease burden, healthcare evaluation, and decision-making for health professionals, managers and patients, and hence contributing significantly to health research and service provision. The appropriate selection (or where appropriate the development), implementation, analysis, interpretation, and reporting of PROMs-related data in research and increasingly in a routine practice setting presents a number of challenges for the healthcare arena. Evaluating and developing understanding around PROMs development, application and interpretation, standards for quality and acceptability, defining the opportunities and limitations of PROMs, are themes central to my research interests. We have developed significant expertise and extensive professional networks in this area over several years and we aim to continue to conduct research which focuses on developing our conceptual, theoretical and methodological understanding of how PROMs are developed, applied and evaluated.

International Society for Quality of Life Research (ISOQOL) Co-Chair of Quality of Life in Clinical Practice Special Interest Group (2011 - )

(ISOQOL) Founding Member of Patient Engagement Special Interest Group (2013 - )

(ISOQOL) Committee Member (2011 - )

Associate Editor - Quality of Life Research (2012 - )

Editorial Board Member - Musculoskeletal Care (2002 - )


I became a Senior Research Fellow (Patient Reported Outcomes) at the RCNI in November 2004, and lead on the Patient Reported Outcomes theme. Prior to this I was Co-Director of the Patient Reported Outcomes Measures Group (formerly the Patient-assessed Health Instruments Group), National Centre for Health Outcomes Development, University of Oxford, working alongside Professor Ray Fitzpatrick and Dr Andrew Garratt. I qualified as a physiotherapist in 1990 and worked in the health service for several years, specializing in rheumatology and musculoskeletal health. In 2000 I graduated from the University of York with a doctorate in Health Sciences and Clinical Evaluation, focusing on health outcomes in Ankylosing Spondylitis (AS). As part of this research I developed an individualized measure for the assessment of health-related quality of life (Patient Generated Index Ankylosing Spondylitis).

Title Funder Award start Award end
Measuring fatigue in Axial Spondyloarthritis (axSpA): refinement, application and evaluation of a new electronic patient-reported outcome measure (the Warwick Axial Spondyloarthritis Fatigue and Energy questionnaire (e-WASTEd)) in rheumatology clinical practice. National Institute for Health Research (NIHR DoH) 01 Aug 2022 31 Jul 2024
WCPRS Studentship - Improving the assessment of Health-Related Quality of Life (HRQoL) for survivors of cardiac arrest C Southern University Hospitals Birmingham NHS Foundation Trust 02 Mar 2020 01 Sep 2023
Developing a quality of life instrument for Cardiac Arrest survivors: understanding what matters to patients - related to WCPRS PhD Studentship (66086) Resuscitation Council (UK) 01 Sep 2020 31 Aug 2022
Public Involvement Fund (linked to 72495) National Institute for Health Research (NIHR DoH) 01 Oct 2021 31 May 2022
Towards a Core Outcome Set for Tibia and Ankle Fractures (COS-TAF) AO Foundation 01 Oct 2019 31 Mar 2022
Public Involvement Fund National Institute for Health Research (NIHR DoH) 04 Oct 2021 10 Nov 2021
Fatigue and Ankylosing Spondylitis: improving patient reported outcomes National Ankylosing Spondylitis Society 01 Oct 2015 30 Apr 2021
PGfAR Full application: Chronic Headache Educations and Self-management Study (CHESS): Resubmission National Institute for Health Research (DoH) 05 Jan 2015 31 Oct 2020
Improving the wellbeing of people with Opioid treated chronic pain: I-WOTCH National Institute for Health Research (DoH) 01 Sep 2016 30 Nov 2019
Development of Individual Supported Employment work-placements to Improve the health-related Quality of Life of people with chronic pain who are unemployed (ISEIQoL)- ARUK Arthritis Research UK 02 Jan 2017 30 Apr 2019
Ankylosing spondylitis (PhD) Staffordshire and Stoke on Trent Partnership Trust 01 Jan 2015 31 Dec 2017
Strategic alliance agreement - Royal College of Nursing Royal College of Nursing 01 Aug 2012 31 Jul 2017
REVISED SUBMISSION - NIHR HTA Feasability study 11/31 - Facet Joints National Institute for Health Research (DoH) 01 Jul 2013 30 Jun 2015
Recommendations for exercise adherence measures: findings from a systematic review and consenus workshop. Chartered Society of Physiotherapy 01 Sep 2013 31 Aug 2014