Kirstie Haywood

Job Title

Professor

Department

WMS - Health Sciences

Phone

024 761 50616

K.L.Haywood@warwick.ac.uk

Research Interests

My research interests embrace the wide array of practical, methodological and theoretical challenges relating to patient reported outcomes, across a range of conditions and settings, including: long-term conditions (for example, rheumatology; chronic fatigue; older people), recovery from episodes of ill-health or injury (for example, traumatic hip fracture, cardiac arrest), and using patient-reported outcome measures (PROMs) in routine settings (for example, womens' health; quality in healthcare). Patient, or person, reported outcomes encompass an individual's experience or expertise about how they feel or function, with respect to their health or associated healthcare. Well-developed patient-reported outcome measures (PROMs) provide valid and reliable assessments of health and treatment outcome, informing the assessment of disease burden, healthcare evaluation, and decision-making for health professionals, managers and patients, and hence contributing significantly to health research and service provision. The appropriate selection (or where appropriate the development), implementation, analysis, interpretation, and reporting of PROMs-related data in research and increasingly in a routine practice setting presents a number of challenges for the healthcare arena. Evaluating and developing understanding around PROMs development, application and interpretation, standards for quality and acceptability, defining the opportunities and limitations of PROMs, are themes central to my research interests. We have developed significant expertise and extensive professional networks in this area over several years and we aim to continue to conduct research which focuses on developing our conceptual, theoretical and methodological understanding of how PROMs are developed, applied and evaluated.

International Society for Quality of Life Research (ISOQOL) Co-Chair of Quality of Life in Clinical Practice Special Interest Group (2011 - )

(ISOQOL) Founding Member of Patient Engagement Special Interest Group (2013 - )

(ISOQOL) Committee Member (2011 - )

Associate Editor - Quality of Life Research (2012 - )

Editorial Board Member - Musculoskeletal Care (2002 - )

Biography

I became a Senior Research Fellow (Patient Reported Outcomes) at the RCNI in November 2004, and lead on the Patient Reported Outcomes theme. Prior to this I was Co-Director of the Patient Reported Outcomes Measures Group (formerly the Patient-assessed Health Instruments Group), National Centre for Health Outcomes Development, University of Oxford, working alongside Professor Ray Fitzpatrick and Dr Andrew Garratt. I qualified as a physiotherapist in 1990 and worked in the health service for several years, specializing in rheumatology and musculoskeletal health. In 2000 I graduated from the University of York with a doctorate in Health Sciences and Clinical Evaluation, focusing on health outcomes in Ankylosing Spondylitis (AS). As part of this research I developed an individualized measure for the assessment of health-related quality of life (Patient Generated Index Ankylosing Spondylitis).

'Pearson, Nathan Ashley, 'Tutton, Elizabeth, 'Martindale, J., 'Strickland, George, 'Thompson, Jean, 'Packham, Jonathan C., 'Creamer, Paul, 'Haywood, Kirstie L., 2022. 'Qualitative interview study exploring the patient experience of living with axial spondyloarthritis and fatigue : difficult, demanding and draining. BMJ Open, 12 (2)
'Haywood, Kirstie L., 'Southern, Charlotte, 'Tutton, Elizabeth, 'Swindell, Paul, 'Ellard, David R., 'Pearson, Nathan A., 'Parsons, Helen, 'Couper, Keith, 'Dainty, Katie N., 'Agarwal, Sachin, 'Perkins, Gavin D., 2022. 'An international collaborative study to co-produce a patient-reported outcome measure of cardiac arrest survivorship and health-related quality of life (CASHQoL) : a protocol for developing the long-form measure.. Resuscitation Plus, 11
Topijian, Alexis, Scholefield, Barnaby, Pinto, Neethi, Fink, Ericka, Buysse, Corinne, Haywood, Kirstie L., Maconochie, Ian, Nadkarni, Vinay, de Caen, Allan, Escalante-Kanashiro, Raffo, Ng, Kee-Chong, Nuthall, Gabrielle, Reis, Amelia, Van de Voorde, Patrick, Suskauer, Stacy, Schexnayder, Steven, Hazinski, Mary Fran, Slomine, Beth, 2021. P-COSCA (Pediatric Core Outcome Set for Cardiac Arrest) in children : an advisory statement from the International Liaison Committee on Resuscitation. Circulation, 142 (16), pp. e246-e261
Haywood, Kirstie L., Potter, Rachel, Froud, Robert J., Pearce, Gemma, Box, Barbara, Muldoon, Lynne, Lipton, Richard, Petrou, Stavros, Rendas-Baum, R., Logan, A., Stewart, Kimberley, Underwood, Martin, Matharu, Manjit, 2021. A core outcome set for preventive intervention trials in chronic and episodic migraine (COSMIG) : an international, consensus-derived and multi-stakeholder initiative. BMJ Open, 11
'Haywood, Kirstie L., 'Achana, Felix A., 'Nichols, Vivien P., 'Pearce, G. F., 'Box, B., 'Muldoon, L., 'Patel, Shilpa, 'Griffiths, Frances, 'Stewart, Kimberley, 'Underwood, M., 'Matharu, M., 2021. 'Measuring heath-related quality of life in chronic headache : a comparative evaluation of the Chronic Headache Quality of Life Questionnaire and Headache Impact Test (HIT-6). Cephalalgia, 41 (10), pp. 1100-1123
Nichols, Vivien P., Pearce, Gemma, Ellard, David R., Evans, Simon, Haywood, Kirstie L., Norman, Chloe, Potter, Rachel, Sandhu, Harbinder, Stewart, Kimberley, Underwood, Martin, Patel, Shilpa, 2021. Patient and public involvement in a UK National Institute for Health Research Programme Grant for Applied Research : experiences from the Chronic Headache Education and Self-management Study (CHESS). Primary Health Care Research & Development, 22
Pearson, Nathan, Tutton, Elizabeth, Joeris, A., Gwilym, S., Grant, R., Keene, D. J., Haywood, Kirstie L., 2021. Co-producing a multi-stakeholder core outcome set for distal tibia and ankle fractures (COSTA) : a study protocol. Trials, 22
'Nolan, Jerry P., 'Sandroni, Claudio, 'B?ttiger, Bernd W., 'Cariou, Alain, 'Cronberg, Tobias, 'Friberg, Hans, 'Genbrugge, Cornelia, 'Haywood, Kirstie L., 'Lilja, Gisela, 'Moulaert, V?ronique R. M., 'Nikolaou, Nikolaos, 'Mariero Olasveengen, Theresa, 'Skrifvars, Markus B., 'Taccone, Fabio, 'Soar, Jasmeet, 2021. 'European Resuscitation Council and European Society of Intensive Care Medicine guidelines 2021 : post-resuscitation care. Resuscitation, 161, pp. 220-269
'Perkins, Gavin D., 'Callaway, Clifton W., 'Haywood, Kirstie L., 'Neumar, Robert W, 'Lilja, Gisela, 'Rowland, Matthew J., 'Sawyer, Kelly N., 'Skrifvars, Markus B., 'Nolan, Jerry P., 2021. 'Brain injury after cardiac arrest. The Lancet, 398 (10307), pp. 1195-1278
Calvert, Melanie, King, Madeleine, Mercieca-Bebber, Rebecca, Aiyegbusi, Olalekan, Kyte, Derek, Slade, Anita, Chan, An-Wen, Basch, E, Bell, Jill, Bennett, Antonia, Bhatnagar, Vishal, Blazeby, Jane, Bottomley, Andrew, Brown, Julia, Brundage, Michael, Campbell, Lisa, Cappelleri, Joseph C, Draper, Heather, Dueck, Amylou C, Ells, Carolyn et al (Select to open full list), 2021.

All authors for SPIRIT-PRO Extension explanation and elaboration : guidelines for inclusion of patient-reported outcomes in protocols of clinical trials

Calvert, Melanie, King, Madeleine, Mercieca-Bebber, Rebecca, Aiyegbusi, Olalekan, Kyte, Derek, Slade, Anita, Chan, An-Wen, Basch, E, Bell, Jill, Bennett, Antonia, Bhatnagar, Vishal, Blazeby, Jane, Bottomley, Andrew, Brown, Julia, Brundage, Michael, Campbell, Lisa, Cappelleri, Joseph C, Draper, Heather, Dueck, Amylou C, Ells, Carolyn, Frank, Lori, Golub, Robert M, Griebsch, Ingolf, Haywood, Kirstie L., Hunn, Amanda, King-Kallimanis, Bellinda, Martin, Laura, Mitchell, Sandra, Morel, Thomas, Nelson, Linda, Norquist, Josephine, O'Connor, Daniel, Palmer, Michael, Patrick, Donald, Price, Gary, Regnault, Antoine, Retzer, Ameeta, Revicki, Dennis, Scott, Jane, Stephens, Richard, Turner, Grace, Valakas, Antonia, Velikova, Galina, von Hildebrand, Maria, Walker, Anita, Wenzel, Lari

SPIRIT-PRO Extension explanation and elaboration : guidelines for inclusion of patient-reported outcomes in protocols of clinical trials. BMJ Open, 11 (6)
Parslow, Roxanne M., Anderson, N., Byrne, D., Haywood, Kirstie L., Shaw, A., Crawley, E., 2020. Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) : prioritisation through card ranking.. Quality of Life Research, 29, pp. 1169-1181
Patel, Shilpa, Achana, Felix A., Carnes, Dawn, Eldridge, Sandra, Ellard, David R., Griffiths, Frances, Haywood, Kirstie L., Hee, Siew Wan, Mistry, Dipesh, Mistry, Hema, Nichols, Vivien P., Petrou, Stavros, Pincus, Tamar, Potter, Rachel, Sandhu, Harbinder, Stewart, Kimberley, Taylor, Stephanie, Underwood, Martin, Matharu, Manjit, 2020. Usual care and a self-management support programme versus usual care and a relaxation programme for people living with chronic headache disorders : a randomised controlled trial protocol (CHESS). BMJ Open, 10 (4)
Froud, Robert, Grant, Mary, Burton, Kim, Foss, Jonathan G. K., Ellard, David R., Seers, Kate, Smith, Deb, Barillec, Marianna, Patel, Shilpa, Haywood, Kirstie L., Underwood, Martin, 2020. Development and feasibility of an intervention featuring individual supported work placements to aid return-to-work for unemployed people living with chronic pain. Pilot and Feasibility Studies, 6
Whitehead, Laura, Tierney, Stephanie, Biggerstaff, Deborah, Perkins, Gavin D., Haywood, Kirstie L., 2020. Trapped in a disrupted normality : survivors' and partners' experiences of life after a sudden cardiac arrest. Resuscitation, 147, pp. 81-87
Parslow, Roxanne M, Shaw, Alison, Haywood, Kirstie L., Crawley, Esther, 2019. Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME) : cognitive interviews with children. Journal of Patient Reported Outcomes, 3
Sandhu, Harbinder K., Abraham, Charles, Alleyne, Sharisse, Balasubramanian, Shyam, Betteley, Lauren, Booth, Katie, Carnes, Dawn, Furlan, Andrea D., Haywood, Kirstie L., Iglesias Urrutia, Cynthia Paola, Lall, Ranjit, Manca, Andrea, Mistry, Dipesh, Nichols, Vivien P., Noyes, Jennifer, Rahman, Anisur, Seers, Kate, Shaw, Jane, Tang, Nicole K. Y., Taylor, Stephanie J. C. et al (Select to open full list), 2019.

All authors for Testing a support programme for opioid reduction for people with chronic non-malignant pain : the I-WOTCH randomised controlled trial protocol

Sandhu, Harbinder K., Abraham, Charles, Alleyne, Sharisse, Balasubramanian, Shyam, Betteley, Lauren, Booth, Katie, Carnes, Dawn, Furlan, Andrea D., Haywood, Kirstie L., Iglesias Urrutia, Cynthia Paola, Lall, Ranjit, Manca, Andrea, Mistry, Dipesh, Nichols, Vivien P., Noyes, Jennifer, Rahman, Anisur, Seers, Kate, Shaw, Jane, Tang, Nicole K. Y., Taylor, Stephanie J. C., Tysall, Colin, Underwood, Martin, Withers, Emma J., Eldabe, Sam

Testing a support programme for opioid reduction for people with chronic non-malignant pain : the I-WOTCH randomised controlled trial protocol. BMJ Open, 9 (8)
Haywood, Kirstie L., 2019. Survival and quality of life following a cardiac arrest: Capturing what really matters to survivors. Resuscitation, 135, pp. 221-223
White, Kimberley, Potter, Rachel, Patel, Shilpa, Nichols, Vivien P., Haywood, Kirstie L., Hee, Siew Wan, Mistry, Dipesh, Carnes, Dawn, Taylor, Stephanie S. J., Underwood, Martin, Matharu, Manjit S., 2019. Chronic headache education and self-management study (CHESS) - a mixed method feasibility study to inform the design of a randomised controlled trial. BMC Medical Research Methodology, 19
Chan, Eric, Edwards, Todd, Haywood, Kirstie L., Milkes, Sean, Humphrey, Louise, 2019. Implementing patient-reported outcome measures in clinical practice : a companion guide to the ISOQOL user's guide. Quality of Life Research, 28, pp. 621-627
Haywood, Kirstie L., Whitehead, Laura, Perkins, Gavin D., 2019. An international, consensus-derived Core Outcome Set for Cardiac Arrest effectiveness trials. Current Opinion in Critical Care, 25 (3), pp. 226-233
Schlussel, Michael M, Keene, David J, Collins, Gary S, Bostock, Jennifer, Byrne, Christopher, Goodacre, Steve, Gwilym, Stephen, Hagan, Daryl A, Haywood, Kirstie, Thompson, Jacqueline, Williams, Mark A, Lamb, Sarah E, 2018. Development and prospective external validation of a tool to predict poor recovery at 9 months after acute ankle sprain in UK emergency departments: the SPRAINED prognostic model. BMJ Open, 8 (11)
Haywood, Kirstie L., Whitehead, Laura, Nadkarni, Vinay M., Achana, Felix A., Beesems, Stefanie, Böttiger, Bernd W., Brooks, Anne, Castrén, Maaret, Ong, Marcus E. H., Hazinski, Mary Fran, Koster, Rudolph W., Lilja, Gisela, Long, John, Monsieurs, Koenraad G., Morley, Peter T., Morrison, Laurie, Nichol, Graham, Oriolo, Valentino, Saposnik, Gustavo, Smyth, Michael A. et al (Select to open full list), 2018.

All authors for COSCA (Core Outcome Set for Cardiac Arrest) in adults : an advisory statement from the International Liaison Committee on Resuscitation

Haywood, Kirstie L., Whitehead, Laura, Nadkarni, Vinay M., Achana, Felix A., Beesems, Stefanie, Böttiger, Bernd W., Brooks, Anne, Castrén, Maaret, Ong, Marcus E. H., Hazinski, Mary Fran, Koster, Rudolph W., Lilja, Gisela, Long, John, Monsieurs, Koenraad G., Morley, Peter T., Morrison, Laurie, Nichol, Graham, Oriolo, Valentino, Saposnik, Gustavo, Smyth, Michael A., Spearpoint, Ken, Williams, Barry, Perkins, Gavin D.

COSCA (Core Outcome Set for Cardiac Arrest) in adults : an advisory statement from the International Liaison Committee on Resuscitation. Circulation, 137 (22), pp. e783-e801
Pearson, Nathan, Packham, Jonathan C., Parsons, Helen, Haywood, Kirstie L., 2018. Quality and acceptability of patient-reported outcome measures used to assess fatigue in axial spondyloarthritis (axSpA) : a systematic review (protocol). Systematic Reviews, 7 (1)
Haywood, Kirstie L., Mars, Tom S., Potter, Rachel, Patel, Shilpa, Matharu, Manjit, Underwood, Martin, 2018. Assessing the impact of headaches and the outcomes of treatment : a systematic review of patient-reported outcome measures (PROMs). Cephalalgia, 38 (7), pp. 1374-1386
Bailey, Daniel L., Holden, Melanie A., Foster, Nadine E., Quicke, Jonathan G., Haywood, Kirstie L., Bishop, Annette, 2018. Defining adherence to therapeutic exercise for musculoskeletal pain : a systematic review. British Journal of Sports Medicine
Keene, David J., Schlüssel, Michael M., Thompson, Jacqueline, Hagan, Daryl A., Williams, Mark A., Byrne, Christopher, Goodacre, Steve, Cooke, Matthew, Gwilym, Stephen, Hormbrey, Philip, Bostock, Jennifer, Haywood, Kirstie L., Wilson, David, Collins, Gary S., Lamb, S. E. (Sallie E.), 2018. Prognostic models for identifying risk of poor outcome in people with acute ankle sprains : the SPRAINED development and external validation study. Health Technology Assessment, 22 (64), pp. 1-112
Haywood, Kirstie L., Pearson, Nathan, Morrison, Laurie J., Castrén, Maaret, Lilja, Gisela, Perkins, Gavin D., 2018. Assessing Health-related Quality of Life (HRQoL) in Survivors of Out-of-Hospital Cardiac Arrest : a systematic review of patient-reported outcome measures. Resuscitation, 123, pp. 22-37
Macfarlane, Gary J, MacDonald, Ross I R, Pathan, Ejaz, Siebert, Stefan, Gaffney, Karl, Choy, Ernest, Packham, Jon, Martin, Kathryn R, Haywood, Kirstie L., Sengupta, Raj, Atzeni, Fabiola, Jones, Gareth T, 2018. Influence of co-morbid fibromyalgia on disease activity measures and response to tumour necrosis factor inhibitors in axial spondyloarthritis: results from a UK national register. Rheumatology, 57 (11), pp. 1982-1990
Pearson, Nathan, Packham, Jonathan, Tutton, Elizabeth, Parsons, Helen, Haywood, Kirstie L., 2018. Assessing fatigue in adults with Axial Spondyloarthritis : a systematic review of the quality and acceptability of patient-reported outcome measures. Rheumatology Advances in Practice, 2 (2)
Macfarlane, Gary J., MacDonald, Ross I. R., Pathan, Ejaz, Siebert, Stefan, Gaffney, Karl, Choy, Ernest, Packham, Jon, Martin, Kathryn R., Haywood, Kirstie L., Sengupta, Raj, Atzeni, Fabiola, Jones, Gareth T., 2018. Influence of co-morbid fibromyalgia on disease activity measures and response to TNF inhibitors in axial spondyloarthritis : results from a UK national register. Rheumatology, 57 (11), pp. 1982-1990
Small, C., Kemp, H., Haywood, K. L., Srivastava, D., 2018. Current variation in the practice of measuring post-operative pain outcomes: time for a national consensus?. British Journal of Anaesthesia, 120 (5), pp. e10-e11
Haywood, Kirstie L., Whitehead, Laura, Nadkarni, Vinay M., Achana, Felix A., Beesems, Stefanie, Böttiger, Bernd W. B, Brooks, Anne, Castrén, Maaret, Ong, Marcus E.H., Hazinski, Mary Fran, Koster, Rudolph W., Lilja, Gisela, Long, John, Monsieurs, Koenraad G., Morley, Peter, Morrison, Laurie, Nichol, Graham, Oriolo, Valentino, Saposnik, Gustavo, Smyth, Mike et al (Select to open full list), 2018.

All authors for Core Outcome Set for Cardiac Arrest (COSCA) in adults : an advisory statement from the International Liaison Committee on Resuscitation

Haywood, Kirstie L., Whitehead, Laura, Nadkarni, Vinay M., Achana, Felix A., Beesems, Stefanie, Böttiger, Bernd W. B, Brooks, Anne, Castrén, Maaret, Ong, Marcus E.H., Hazinski, Mary Fran, Koster, Rudolph W., Lilja, Gisela, Long, John, Monsieurs, Koenraad G., Morley, Peter, Morrison, Laurie, Nichol, Graham, Oriolo, Valentino, Saposnik, Gustavo, Smyth, Mike, Spearpoint, Ken, Williams, Barry, Perkins, Gavin D.

Core Outcome Set for Cardiac Arrest (COSCA) in adults : an advisory statement from the International Liaison Committee on Resuscitation. Resuscitation, 127, pp. 147-163
Ellard, David R., Underwood, Martin, Achana, Felix A., Antrobus, James H. L., Balasubramanian, Shyam, Brown, Sally, Cairns, Melinda, Griffin, James M., Griffiths, Frances, Haywood, Kirstie L., Hutchinson, Charles E., Lall, Ranjit, Petrou, Stavros, Stallard, Nigel, Tysall, Colin, Walsh, David A., Sandhu, Harbinder, 2017. Facet joint injections for people with persistent non-specific low back pain (Facet Injection Study) : a feasibility study for a randomised controlled trial. Health Technology Assessment, 21 (30), pp. 1-184
Haywood, Kirstie L., Lyddiatt, Anne, Brace-McDonnell, Samantha J., Staniszewska, Sophie, Salek, Sam, 2017. Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research : an international, multiple-stakeholder perspective. Quality of Life Research, 26 (6), pp. 1393-1404
Parslow, Roxanne M, Harris, Sarah, Broughton, Jessica, Alattas, Adla, Crawley, Esther, Haywood, Kirstie L., Shaw, Alison, 2017. Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : a systematic review and meta-ethnography of qualitative studies. BMJ Open, 7 (1)
Haywood, Kirstie L., Brett, Jo, Tutton, Elizabeth, Staniszewska, Sophie, 2017. Patient-reported outcome measures in older people with hip fracture : a systematic review of quality and acceptability. Quality of Life Research, 26 (4), pp. 799-812
Kirwan, John R., de Wit, Maarten, Frank, Lori, Haywood, Kirstie L., Salek, Sam, Brace-McDonnell, Samantha J., Lyddiatt , Anne, Barbic, Skye P., Alonso, Jordi, Guillemin, Francis, Bartlett, Susan J., 2017. Emerging guidelines for patient engagement in research. Value in Health, 20 (3), pp. 481-486
McLean, Sionnadh, Holden, Melanie A., Potia, Tanzila, Gee, Melanie, Mallett, Ross, Bhanbhro, Sadiq, Parsons, Helen, Haywood, Kirstie L., 2017. Quality and acceptability of measures of exercise adherence in musculoskeletal settings : a systematic review. Rheumatology, 56 (3), pp. 426-438
Ji, Chen, Lall, Ranjit, Quinn, T., Kaye, Charlotte, Haywood, Kirstie L., Horton, Jessica, Gordon, Victoria, Deakin, C. D., Pocock, H., Carson, A., Smyth, Michael A., Rees, N., Kyee, Han, Byers, S., Brace-McDonnell, Samantha J., Gates, Simon, Perkins, Gavin D., 2017. Post-admission outcomes of participants in the PARAMEDIC trial : a cluster randomised trial of mechanical or manual chest compressions. Resuscitation, 118, pp. 82-88
Parslow, Roxanne M, Shaw, Alison, Haywood, Kirstie L., Crawley, Esther, 2017. Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : perspectives of health professionals from specialist services. BMC Pediatrics, 17 (43)
Parslow, Roxanne M., Shaw, Alison, Haywood, Kirstie L., Crawley, Esther, 2017. Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : perspectives of health professionals from specialist services. BMC Pediatrics, 17 (1)
Mentzelopoulos, Spyros D., Bossaert, Leo, Raffay, Violetta, Askitopoulou, Helen, Perkins, Gavin D., Greif, Robert, Haywood, Kirstie L., Van de Voorde, Patrick, Xanthos, Theodoros, 2016. A survey of key opinion leaders on ethical resuscitation practices in 31 European Countries. Resuscitation, 100, pp. 11-7
Kyte, Derek, Reeve, Bryce B., Efficace, Fabio, Haywood, Kirstie L., Mercieca-Bebber, Rebecca, King, Madeleine T., Norquist, Josephine M., Lenderking, William R., Snyder, Claire, Ring, Lena, Velikova, Galina, Calvert, Melanie, 2016. International Society for Quality of Life Research commentary on the draft European Medicines Agency reflection paper on the use of patient-reported outcome (PRO) measures in oncology studies. Quality of Life Research, 25 (2), pp. 359-62
Haywood, Kirstie L., Wilson, Roger, Staniszewska, Sophie, Salek, Sam, 2016. Using PROMs in healthcare. Who should be in the driving seat - policy makers, health professionals, methodologists or patients?. Patient: Patient-Centered Outcomes Research, 9 (6), pp. 495-498
Sandhu, Harbinder, Ellard, David R., Achana, Felix A., Antrobus, James H. L., Balasubramanian, Shyam, Brown, Sally, Cairns, Melinda, Griffiths, Frances, Haywood, Kirstie L., Hutchinson, Charles E., Lall, Ranjit, Petrou, Stavros, Stallard, Nigel, Tysall, Colin, Walsh, David A., Underwood, Martin, 2015. Facet-joint injections for people with persistent non-specific low back pain (FIS) : study protocol for a randomised controlled feasibility trial. Trials, 16 (1)
Potgieter, Roxanne, Patel, Aarti, Beasant, Lucy, Haywood, Kirstie L., Johnson, Debbie, Shaw, Alison, Crawley, Esther, 2015. Complexity, context and considerations for treatment in CFS/ME : children's versus health professional?s conceptual model. Trials, 16 (Supplement 1)
Haywood, Kirstie L., Brett, Jo, Salek, Sam, Marlett, Nancy, Penman, Colin, Shklarov, Svetlana, Norris, Colleen, Santana, Maria Jose, Staniszewska, Sophie, 2015. Patient and public engagement in health-related quality of life and patient-reported outcomes research : what is important and why should we care? Findings from the first ISOQOL patient engagement symposium.. Quality of Life Research, 24 (5), pp. 1069-76
Griffiths, Frances, Mason, Victoria, Boardman, Felicity K., Dennick, Kathryn J., Haywood, Kirstie L., Achten, Juul, Parsons, Nicholas R., Griffin, Xavier L., Costa, Matthew L., 2015. Evaluating recovery following hip fracture : a qualitative interview study of what is important to patients. British Medical Journal, 5 (1), pp. 1-10
Parslow, Roxanne, Patel, Aarti, Beasant, Lucy, Haywood, Kirstie L., Johnson, Debbie, Crawley, Esther, 2015. What matters to children with CFS/ME? A conceptual model as the first stage in developing a PROM. Archives of Disease in Childhood, 100 (12), pp. 1141-1147
Mars, Tom S., Ellard, David R., Antrobus, James H. L., Cairns, Melinda, Underwood, Martin, Haywood, Kirstie L., Keohane, Susie, Sandhu, Harbinder, Griffiths, Frances, 2015. Intra-articular facet injections for low back pain : design considerations, consensus methodology to develop the protocol for a randomised controlled trial. Pain Physician, 18 (5), pp. 473-493
Bossaert, Leo L., Perkins, Gavin D., Askitopoulou, Helen, Raffay, Violetta I., Greif, Robert, Haywood, Kirstie L., Mentzelopoulos, Spyros D., Nolan, Jerry P., Van de Voorde, Patrick, Xanthos, Theodoros T., 2015. European Resuscitation Council Guidelines for Resuscitation 2015 : Section 11. The ethics of resuscitation and end-of-life decisions. Resuscitation, 95, pp. 302-11
Holden, Melanie A., Haywood, Kirstie L., Potia, Tanzila A., Gee, Melanie, McLean, Sionnadh, 2014. Recommendations for exercise adherence measures in musculoskeletal settings : a systematic review and consensus meeting (protocol). Systematic Reviews, 3 (1)
Haywood, Kirstie L., Collin, S. M., Crawley, E., 2014. Assessing severity of illness and outcomes of treatment in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) : a systematic review of patient-reported outcome measures (PROMs). Child: Care, Health and Development, 40 (6), pp. 806-24
Haywood, Kirstie L., Packham, Jonathan C., Jordan, Kelvin P., 2014. Assessing fatigue in ankylosing spondylitis : the importance of frequency and severity. Rheumatology, 53 (3), pp. 552-556
Haywood, Kirstie L., Whitehead, Laura, Perkins, Gavin D., 2014. The psychosocial outcomes of cardiac arrest : relevant and robust patient-centred assessment is essential. Resuscitation, 85 (6), pp. 718-9
Haywood, Kirstie L., Griffin, Xavier L., Achten, Juul, Costa, Matthew L., 2014. Developing a core outcome set for hip fracture trials. The Bone & Joint Journal, 96-B (8), pp. 1016-1023
Whitehead, Laura, Perkins, Gavin D., Clarey, Andrew, Haywood, Kirstie L., 2013. A systematic review of the outcomes reported in cardiac arrest clinical trials : the need for a core outcome set. Resuscitation, 88 (Supplement 1), pp. 150-7
Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, J. C., 2013. Patients with well-established Ankylosing Spondylitis show limited deterioration in a ten-year prospective cohort study. Clinical Rheumatology, volume 32 (1), pp. 67-72
Haywood, Kirstie L., Staniszewska, Sophie, Chapman, Sarah, 2012. Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : a systematic review. Quality of Life Research, Vol.21 (No.1), pp. 35-52
Packham, J. C., Jordan, Kelvin, Haywood, Kirstie L., Garratt, Andrew M., Healey, E. L., 2012. Evaluation of Ankylosing Spondylitis quality of life questionnaire : responsiveness of a new patient-reported outcome measure. Rheumatology, Vol.51 (No.4), pp. 707-714
Rafia, Rachid, Ara, Roberta, Packham, Jon, Haywood, Kirstie L., Healey, Emma, 2012. Healthcare costs and productivity losses directly attributable to ankylosing spondylitis. Clinical and Experimental Rheumatology, 30 (2), pp. 246-53
Staniszewska, Sophie, Haywood, Kirstie L., Brett, Jo, Tutton, Liz, 2012. Patient and public involvement in patient-reported outcome measures. Patient: Patient-Centered Outcomes Research, Vol.5 (No.2), pp. 79-87
Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, Jonathan C., 2011. Impact of ankylosing spondylitis on work in patients across the UK. Scandinavian Journal of Rheumatology, 40 (1), pp. 34-40
Staniszewska, Sophie, Adebajo, Ade, Barber, Rosemary, Beresford, Peter, Brady, Louca-Mai, Brett, Jo, Elliott, J., Evans, David, Haywood, Kirstie L., Jones, D., Mockford, Carole, Nettle, Mary, Rose, Diana, Williamson, Tracey, 2011. Developing the evidence base of patient and public involvement in health and social care research : the case for measuring impact. International Journal of Consumer Studies, 35 (6), pp. 628-632
Sandhu, J., Packham, Jonathan C., Healey, Emma L., Jordan, Kelvin, Garratt, Andrew M., Haywood, Kirstie L., 2011. Evaluation of a modified arthritis self-efficacy scale for an ankylosing spondylitis UK population. Clinical and Experimental Rheumatology, 29 (2), pp. 223-230
Healey, E. L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, J. C., 2010. Disease severity in ankylosing spondylitis : variation by region and local area deprivation. Journal of Rheumatology, Vol.37 (No.3), pp. 633-638
Haywood, Kirstie L., Garratt, Andrew M., Jordan, Kelvin, Healey, Emma L., Packham, Jonathan C., 2010. Evaluation of ankylosing spondylitis quality of life (EASi-QoL): reliability and validity of a new patient-reported outcome measure. Journal of Rheumatology, Vol.37 (No.10), pp. 2100-2109
Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Ryan, Sarah, Packham, Jon C., 2009. Ankylosing spondylitis and its impact on sexual relationships. Rheumatology, Vol.48 (No.11), pp. 1378-1381
Haywood, Kirstie L., Garratt, Andrew M., Carrivick, Sandra, Mangnall, Joanne, Skevington, Suzanne M., 2009. Continence specialists use of quality of life information in routine practice: a national survey of practitioners. Quality of Life Research, Vol.18 (No.4), pp. 423-433
Ara, R. M., Packham, J. C., Haywood, Kirstie L., 2008. The direct healthcare costs associated with ankylosing spondylitis patients attending a UK secondary care rheumatology unit. Rheumatology, Vol. 47 (No. 1), pp. 68-71
Haywood, Kirstie L., Garratt, Andrew M., Lall, Ranjit, Smith, Jan Fereday, Lamb, S. E. (Sallie E.), 2008. EuroQol EQ-5D and condition-specific measures of health outcome in women with urinary incontinence : reliability, validity and responsiveness. Quality of Life Research, 17 (3), pp. 475-483

Haywood, Kirstie L., 2010. Patient Reported Outcomes in the Rheumatic Diseases. Dziedzic, Krysia; Hammond, Alison (eds.), Rheumatology : evidence-based practice for physiotherapists and occupational therapists, Edinburgh, Churchill Livingstone

Seers, Kate, Tutton, Liz, Tierney, Stephanie, Mockford, Carole, Staniszewska, Sophie, Haywood, Kirstie L., 2016. Knowledge for change and improvement : developing partnership through involving and engaging others. RCN International Centenary conference, QEII Centre, 22?23 Nov 2016
Underwood, Martin, Antrobus, James H. L., Barkan, Kerry, Cairns, M., Ellard, David R., Griffiths, Frances, Haywood, Kirstie L., Keohane, S., Lega, C., Mars, Tom S., Sandhu, Harbinder, Stallard, Nigel, 2014. Facet-joint injections for people with persistent non-specific low back pain (FIS). Facet Injection Study Consensus Conference (FISCC), University of Warwick, UK, 27 Jun 2014
Packham, Jon, Jordan, Kelvin, Lebmeier, Max, Garratt, Andrew M., Healey, Emma L., Haywood, Kirstie L., 2010. Responsiveness of the evaluating ankylosing spondylitis quality of life (EASI-QOL) questionnaire. Annual Meeting of the British Society of Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Birmingham, England, April 21-23, 2010, Published in Rheumatology, pp. I57-I58
Sandhu, Jaswant, Packham, Jon C., Healey, Emma L., Jordan, Kelvin, Garratt, Andrew M., Haywood, Kirstie L., 2010. Evaluation of a modified arthritis self-efficacy scale for ankylosing spondylitis (ASES-AS). Annual Meeting of the British Society of Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Birmingham, England, April 21-23, 2010, Published in Rheumatology, pp. I53-I53
Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, Jonathan C., 2010. Patients with well-established ankylosing spondylitis show limite deterioration in a 10-year prospective cohort study. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British-Health-Professional-in-Rheumatology, Birmingham, England, April 21-23, 2010, Published in Rheumatology, pp. I20-I20
Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Garratt, Andrew M., Packham, Jon C., 2009. The effect of social deprivation in ankylosing spondylitis. Annual Meeting of the British Society of Rheumatology, Glasgow, Scotland, April 28-May 01, 2009, Published in Rheumatology, pp. I8-I8
Haywood, Kirstie L., Garratt, Andrew M., Healey, Emma L., Jordan, Kelvin, Packham, Jon C., 2009. Evaluating ankylosing spondylitis quality of life (EASi-QoL): reliability and validity of a new patient reported outcome measure. Annual Meeting of the British-Society-of-Rheumatology, Glasgow, Scotland, April 28-May 01, 2009, Published in Rheumatology, pp. I7-I8
Healey, Emma L., Haywood, Kirstie L., Packham, Jonathan C., 2008. Anti-TNF eligibility & treatment in a large cohort of patients with ankylosing spondylitis across the United Kingdom. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Liverpool, England, Apr 22-25, 2007, Published in Rheumatology, pp. II70-II70
Healey, Emma L., Haywood, Kirstie L., Jordan, Kelvin, Packham, Jonathan C., 2008. Prevalence, gender differences and factors associated with anxiety and depression in a large cohort of patients with ankylosing spondylitis from across the United Kingdom. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Liverpool, England, Apr 22-25, 2007, Published in Rheumatology, pp. II78-II78
Healey, Emma L., Haywood, Kirstie L., Packham, Jonathan C., 2008. Work status in a large cohort of ankylosing spondylitis patients from across the United Kingdom. Annual Meeting of the British-Society-Rheumatology/Spring Meeting of British Health Professional in Rheumatology, Liverpool, England, Apr 22-25, 2007, Published in Rheumatology, pp. II74-II74

Bossaert, Leo L., Perkins, Gavin D., Askitopoulou, Helen, Raffay, Violetta I., Greif, Robert, Haywood, Kirstie L., Mentzelopoulos, Spyros D., Nolan, Jerry P., Van de Voorde, Patrick, Xanthos, Theodoros T., 2016. Reply to letter : Family presence during cardiopulmonary resuscitation : evidence-based guidelines?. Resuscitation, pp. e7-e8
Whitehead, L., Perkins, G. D., Haywood, K. L., 2015. What is important to cardiac arrest survivors? A qualitative exploration of outcomes. Quality of Life Research, Springer Netherlands, pp. 151-152

Title	Funder	Award start	Award end
Measuring fatigue in Axial Spondyloarthritis (axSpA): refinement, application and evaluation of a new electronic patient-reported outcome measure (the Warwick Axial Spondyloarthritis Fatigue and Energy questionnaire (e-WASTEd)) in rheumatology clinical practice.	National Institute for Health Research (NIHR DoH)	01 Aug 2022	31 Jul 2024
WCPRS Studentship - Improving the assessment of Health-Related Quality of Life (HRQoL) for survivors of cardiac arrest C Southern	University Hospitals Birmingham NHS Foundation Trust	02 Mar 2020	01 Sep 2023
Developing a quality of life instrument for Cardiac Arrest survivors: understanding what matters to patients - related to WCPRS PhD Studentship (66086)	Resuscitation Council (UK)	01 Sep 2020	31 Aug 2022
Public Involvement Fund (linked to 72495)	National Institute for Health Research (NIHR DoH)	01 Oct 2021	31 May 2022
Towards a Core Outcome Set for Tibia and Ankle Fractures (COS-TAF)	AO Foundation	01 Oct 2019	31 Mar 2022
Public Involvement Fund	National Institute for Health Research (NIHR DoH)	04 Oct 2021	10 Nov 2021
Fatigue and Ankylosing Spondylitis: improving patient reported outcomes	National Ankylosing Spondylitis Society	01 Oct 2015	30 Apr 2021
PGfAR Full application: Chronic Headache Educations and Self-management Study (CHESS): Resubmission	National Institute for Health Research (DoH)	05 Jan 2015	31 Oct 2020
Improving the wellbeing of people with Opioid treated chronic pain: I-WOTCH	National Institute for Health Research (DoH)	01 Sep 2016	30 Nov 2019
Development of Individual Supported Employment work-placements to Improve the health-related Quality of Life of people with chronic pain who are unemployed (ISEIQoL)- ARUK	Arthritis Research UK	02 Jan 2017	30 Apr 2019
Ankylosing spondylitis (PhD)	Staffordshire and Stoke on Trent Partnership Trust	01 Jan 2015	31 Dec 2017
Strategic alliance agreement - Royal College of Nursing	Royal College of Nursing	01 Aug 2012	31 Jul 2017
REVISED SUBMISSION - NIHR HTA Feasability study 11/31 - Facet Joints	National Institute for Health Research (DoH)	01 Jul 2013	30 Jun 2015
Recommendations for exercise adherence measures: findings from a systematic review and consenus workshop.	Chartered Society of Physiotherapy	01 Sep 2013	31 Aug 2014