Who’s Challenging Who? – website launches to showcase how involving people with learning disability in developing and delivering training has positive effects on staff attitudes and on the trainers themselves.

• A package of resources from a unique training programme co-created and delivered by people with learning disability has been launched today by researchers.
• The Who’s Challenging Who training course was developed to improve staff attitudes and empathy towards people with learning disabilities whose behaviour is or had previously been labelled as “challenging.”
• Video interviews with the trainers, an easy-to-read summary, a policy brief for decision-makers and full details of all the research findings have been released on the WCW website.
• A large scale evaluation of the training found that it had positive effects on staff empathy.
• The researchers hope that the videos and the accessible documents will enable people with learning disabilities to explore the project and find out more for themselves.

Research findings, an easy-to-read summary, a policy brief and series of video interviews with people with learning disability who co-created and delivered the Who’s Challenging Who training project are published today by the University of Warwick’s Centre for Educational Development, Appraisal and Research (CEDAR).

The Who’s Challenging Who (WCW) training course is a half-day course for social care staff designed to improve staff attitudes towards people with learning disabilities who display behaviours that challenge. A two-year research project carried out by CEDAR and the Centre for Trials Research at Cardiff University with support from Mencap evaluated the impact of the course on care staff and on the people with learning disabilities who co-developed and co-delivered it.

The project team has compiled and published online a range of resources to help communicate why the research was carried out, why it was important for the training to be co-created and co-delivered by people with learning disabilities, and what a large-scale trial discovered about the effectiveness of the training.

A key part of the package is a series of video interviews in which Ben and Phil, two of the trainers, talk about their experiences delivering the training course and what they felt they gained from being involved in the project.

Around one in six people with learning disability engage in behaviours that challenge which can include aggression, self-injury, and damage to property. In social and healthcare settings, the attitudes and actions of staff can make behaviours that challenge more likely, and can influence the quality of care a person receives. The WCW staff training course was designed in partnership with people with learning disability to address lack of staff empathy and negative attitudes.

Each training course was delivered by a person with learning disability whose behaviour had been labelled as ‘challenging’, facilitated by a person without an learning disability. In the half-day course, staff members heard directly from their trainer about their experiences and feelings on a range of issues including communication, problems in the living situation, medication, restraint and inclusion. Staff were also encouraged to imagine themselves in a range of typical situations, and to discuss what qualities contributed to good care and support. Two follow-up coaching calls also formed part of the intervention.

In a research first, a large-scale cluster randomised controlled trial (RCT) was carried out to evaluate the training. The trial was carried out by the University of Warwick’s Centre for Educational Development, Appraisal and Research (CEDAR), and the Centre for Trials Research at Cardiff University, with support from Mencap, and funded by the NIHR School for Social Care Research.

Overall, the study found that the training achieved its goal of positively influencing staff attitudes.

Working in partnership with people with learning disabilities from the outset was one of the key successes of the project. Staff members benefitted from the experience of being trained by people with intellectual disability:-

“A lot of the course I suppose was telling us stuff that we already knew because we work with these adults on a daily basis anyway, but the fact of having it given from a person with a learning disability, from their point of view, that was interesting, that was an eye-opener.”

Having a valued role for which they were paid a fair wage for their expertise was important for the trainers with intellectual disability. The trainers also were pleased to use their own lived experiences to advocate for other people:-

“If I’ve at least changed one person’s life in the system for the better then I’ve done my job. That’s why I do training, for that satisfaction.”

Professor Richard Hastings, Professor at CEDAR, commented:

“We can now say with confidence that WCW has significant potential to contribute to the range of training staff are offered when working with individuals with behaviours that challenge. WCW is short, low cost to deliver, has some positive outcomes, receives positive evaluations from staff, and is led by people with learning disabilities.”

Zac Taylor, Head of Practice Strategy and Design at Mencap, said: “Many people with learning disability experience a life where they are seen as people with little to contribute to the world they live in. The opportunity to have meaningful and paid employment is often limited and people are often treated as passive recipients of support. As a paid trainer with an agreed responsibility to deliver training this is changed - people are recognised as the skilled individuals they are, and are treated as active participants in their community, increasing their own sense of self-worth and offering the opportunity for people to know they have contributed towards something meaningful and worthwhile.”

• Links to the trial protocol and research papers are all available at: https://warwick.ac.uk/fac/soc/cedar/whoschallengingwho/
• A series of short videos about the trainers’ experiences of being involved in the WCW project are available on the WCW YouTube channel: https://bit.ly/2Ixx2EN
• The research is published in the Journal of Intellectual Disability Research. https://onlinelibrary.wiley.com/doi/full/10.1111/jir.12536
• An account of the co-production process for the WCW intervention is given in the August 2018 issue of Learning Disability Practice. https://journals.rcni.com/learning-disability-practice/evidence-and-practice/the-experiences-of-people-with-learning-disabilities-in-coproduced-challenging-behaviour-training-ldp.2018.e1909/print/abs
• The full trial protocol is available at: https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-017-2175-1

 

NOTES

The research was funded by The National Institute for Health Research School for Social Care Research. Established by the Department of Health, the NIHR:

•funds high quality research to improve health

•trains and supports health researchers

•provides world-class research facilities

•works with the life sciences industry and charities to benefit all

•involves patients and the public at every step

For further information, visit the NIHR website (www.nihr.ac.uk).

 

 

 

 

 

CONTACTS

Sheila Kiggins

Media Relations Manager

University of Warwick

s.kiggins@warwick.ac.uk

Phone: +44 (2476) 150423

 

Richard Haggerty

Senior Communications Officer

Centre for Trials Research

College of Biomedical & Life Sciences

Cardiff University

Phone: +44 (029) 20 688 618

Email: haggertyr@cardiff.ac.uk