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Below is a list of useful links and resources for PPI advisors and anyone interested in public involvement in research.

Resources for Public Contributors
  • A research handbook for patient and public involvement researchers – A really useful handbook This handbook is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR) called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP).
  • The CLAHRC West Midlands PPIE strategy - a one page document to communicate the overarching aims and ambitions of Patient and Public Involvement and Engagement (PPIE) in the CLAHRC West Midlands initiative.
NIHR Campaigns
  • I Am Research campaign - giving patients, the public and health and social care research professionals a chance to shout about how fantastic research is. Aiming to raise awareness of the benefits of research and the positive impact it has on people's lives.
  • NIHR ‘Ok to ask’ campaign - a campaign encourage more patients or carers to ask about research opportunities that could be available to them or their loved ones, if they have a medical condition they are receiving treatment for. That essentially it is “OK to ask” about research opportunities.
  • NIHR ‘make it clear’ campaign - From 14 May 2014, a good quality plain English summary, submitted as part of the standard application form, will be a requirement of NIHR funding. Guidance has been developed for researchers and for board and panel members.
Useful Tools
  • BAME Toolkit - This toolkit, developed by our colleagues in ARC East Midlands, captures best practice and provides researchers with a framework on how to improve the participation of Black and Minority Ethnic (BAME) groups in research.

  • The Get-It Glossary - an online glossary of health research terms defined in plain English.
  • Jargon Buster - a glossary of words containing the definitions of some of the terms commonly used in public involvement in research.
Other Resources