Resources
Below is a list of useful links and resources for PPI advisors and anyone interested in public involvement in research.
CLAHRC WM PPI Strategy
- The CLAHRC West Midlands PPIE strategyLink opens in a new window - a one page document to communicate the overarching aims and ambitions of Patient and Public Involvement and Engagement (PPIE) in the CLAHRC West Midlands initiative.
NIHR INVOLVE Resources
- Involve - the national advisory group in the field of public involvement in research.
- NIHR INVOLVE Values and Principles FrameworkLink opens in a new window
- NIHR INVOLVE Standards for InvolvementLink opens in a new window
- NIHR INVOLVE Guidance on Co-Producing a Research ProjectLink opens in a new window
- NIHR Going the Extra MileLink opens in a new window - final report and recommendations of the strategic review of public involvement in the NIHR
NIHR Campaigns
- NHS at 70 campaignLink opens in a new window - The National Health Service turned 70 on 5 July 2018. It’s the perfect opportunity to celebrate the achievements of one of the nation’s most loved institutions, to appreciate the vital role the service plays in our lives, and to recognise and thank the extraordinary NHS staff.
- I Am Research campaignLink opens in a new window - giving patients, the public and health and social care research professionals a chance to shout about how fantastic research is. Aiming to raise awareness of the benefits of research and the positive impact it has on people's lives.
- NIHR ‘Ok to ask’ campaignLink opens in a new window - a campaign encourage more patients or carers to ask about research opportunities that could be available to them or their loved ones, if they have a medical condition they are receiving treatment for. That essentially it is “OK to ask” about research opportunities.
- NIHR ‘make it clear’ campaignLink opens in a new window - From 14 May 2014, a good quality plain English summary, submitted as part of the standard application form, will be a requirement of NIHR funding. Guidance has been developed for researchers and for board and panel members.
CLAHRC WM PPI Research
- GRIPP2 reporting checklistsLink opens in a new window: tools to improve reporting of patient and public involvement in research
Useful Tools
- The Get-It Glossary Link opens in a new window- an online glossary of health research terms defined in plan english.
- Jargon BusterLink opens in a new window - a glossary of words containing the definitions of some of the terms commonly used in public involvement in research.
Other Resources
- Popay, J and Collins, M (editors) with the PiiAF Study Group(2014). The Public Involvement Impact Assessment Framework Guidance. Universities of Lancaster, Liverpool and Exeter.
Link opens in a new window - Values and standards in for patient involvement in Health Technology AssessmentLink opens in a new window.