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Use of Patient Reported Outcome Measures in Adult Social Care 1: A Scoping Review of the Evidence

Leads: Mrs Sarah Hughes, Dr Olalekan Lee Aiyegbusi, Prof Mel Calvert (Long-term Conditions), Prof Robin Miller (Social Care)

The team are working closely with a patient partner, an expert by experience, who is a member of the project management group.

Dates: September 2020 - June 2021


Patient reported outcomes (PROs) are measures of a person’s own views of their health, functioning, and quality of life. They are typically assessed using validated, self-completed questionnaires known as patient reported outcome measures (PROMs). PROMs are used in healthcare settings to support care planning, clinical decision-making, facilitate communication between patients and healthcare providers, and enable service development and quality improvement. PROMs have a potential role in the delivery of adult social care where people often have complex, long-term health needs. However, the use of PROMs in this context is currently unclear.

Policy and Practice Partners:

Partners include public contributors with lived experience and representatives of local government and third sector organisations.

Co-Funding Partners:

Birmingham City Council.

Aims and Objective:

This scoping review aims to provide a broad overview of the current research base on the use of PROs in adult social care to summarise current knowledge, identify knowledge gaps, and to inform policy, practice, and future research questions.

The specific review objectives are:

  1. Identify PROMs used in adult social care interventions.
  2. Characterise how PROMs have been applied in these contexts.
  3. Chart the evidence relating to the effectiveness, barriers and facilitators to implementation, and attitudinal and behavioural responses of stakeholders to use of PROs in adult social care.


This scoping review will use the methodology proposed by the Joanna Briggs Institute, supported by the original scoping review framework proposed by Arksey and O’Malley. The electronic databases Medline (Ovid), PsychInfo (Ovid), ASSIA (ProQuest), Social Care Online (SCIE), Web of Science, and EMBASE (Ovid) will be searched to identify eligible studies, reports, and other publicly available documents published since 2010. A grey literature search and hand searching of citations and reference lists will also be undertaken. No restrictions on study design or language of publication will be applied. Two reviewers will complete screening and data extraction independently. Quality appraisal of the included documents will use the CASP and AACODS checklists. A customised data charting table will be used for data extraction, with analysis of qualitative data using the Framework Method. The review findings will be presented as tables and in a narrative summary. The review is registered online with the Open Science Framework (

Main Results:

This review is ongoing.


In progress.

Implications for Implementation:

The findings from this project will feed into future research projects and inform the development of guidance and support on the implementation of PROs in social care.