Join Dementia Research (www.joindementiaresearch.nihr.ac.uk) is a nationwide online and telephone service where you can register your interest in participating in dementia research. Anyone 18 or over, with or without dementia, can register as a volunteer or sign-up for someone else, providing that you have their consent. Some dementia research studies currently taking place in the West Midlands:
The MADE (Minocycline in Alzheimer’s Disease Efficacy) trial aims to determine whether the antibiotic drug Minocycline is effective in reducing the rate of cognitive and functional decline over a 2-year period for people with very mild Alzheimer’s Disease.
The IDEAL study is investigating what helps people to live well with dementia. What the researchers find out will be used to guide policy and practice for helping people living with dementia.
The use of home adaptation by people with dementia study is looking to improve knowledge regarding how people with dementia and their carers access and respond to information and advice about adapting their homes. This understanding will hopefully lead to improved information and education for people living with dementia on how they can make adaptations which enable them to stay at home for longer. The study is based at the University of Warwick.
The Birmingham Cognitive Screen (BCoS) is a paper and pencil assessment used to assess aspects of memory in people with cognitive impairment. It helps indicate whether a person might have difficulty in memory, communication, attention, decision making, planning or carrying out everyday tasks. The Assessing the cognitive profiles of different types of dementia study aims to compare performance on the BCoS in different groups of younger patients (under 75) with mild dementia. BCoS will also be compared with an existing assessment, the ACE-3, used routinely for dementia assessment, on how well BCoS reflects the full range of abilities within individuals.
You can see if you are eligible for any of these studies – and others around the nation by logging into your Join Dementia Research account. If you haven’t yet registered with Join Dementia Research, why not sign up today?