e-Participate

Are you interested in dementia related research? Would you know of anyone who would like to participate in dementia related research or be made aware of opportunities they may wish to know more about?

Join Dementia Research (JDR) (www.joindementiaresearch.nihr.ac.uk) is a national initiative that forms part of the Governments 2020 Dementia Strategy. The initiative was launched in February 2015 and provides the platform for members of public to register their interest in volunteering to take part in dementia related research. It gives patients and their carers the opportunity to be involved in studies which they may not have been made aware of.

 By signing up to the register, volunteers give their consent to be contacted by researchers whose studies have been downloaded onto the system. Volunteers are under no obligation to take part should they not wish to do so. They can choose which studies they wish to know more about. Anyone over the age of 18 can join. You don’t have to have a dementia related diagnosis. Family members, carers and friends are all invited to join. 

To join up is simple; it can be done online, via the telephone or by completing a pre-paid, self-addressed paper registration form. The goal is that by 2020, 100.000 volunteers will have signed up to the register.

As at 4 January 2018, 32,600 had signed up, of which 26,616 did not have a diagnosis or known diagnosis, leaving only 5,670 with a diagnosis. As well as increasing this number we are actively looking to encourage those with a diagnosis to consider signing up.

If you are interested in finding out more about Join Dementia Research either to sign up or find out ways of supporting its promotion, please contact the Help desk directly or contact your local research facilitator, details on page 12 or Jackie Smart email: jacqueline.smart@nihr.ac.uk