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Human Rights Norms for Health Data Governance

This package is led by Belinda Rawson from the University of Warwick in the UK.

Drawing on theoretical understandings of coloniality and human rights vernacularisation, this work package will track norm creation processes by empirically investigating the implementation of the Health Data Governance PrinciplesLink opens in a new window by organisations at the community, national, regional and global levels. The Principles aim to be globally unifying, equity and human rights-based principles that can safeguard human rights while promoting equitable benefit from health data, and their normative value will be assessed.