‘Our Planet, Our Health and Our Future’
The BIS Data Trust will host a stall at The University of Edinburgh COP27 public engagement event ‘Our Planet, Our Health and Our Future’ held at Dynamic Earth. In this ‘conversation fair’, we will be asking the public their views on how their data can be used to support research into the effects of climate change on health.
We want to know more about public perceptions of the model and how it could look in the future. Through our empirical work we are investigating what the concept of a data trust means to individuals, what individuals would like a data trust to be able to achieve, and whether they have an interest in a model like the data trust for the future of health research.
We are holding a focus group in Edinburgh with BIS participants to understand their views about how their health data – and their children’s health data – are used and governed. We aim to be able take these learnings to co-develop a pilot data trust with BIS participants in a ‘bottom-up’ manner.