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Holistic needs assessment: A survey of the use of tools in prostate cancer care and follow up

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Prostate Cancer UK and its partners in Australia, Canada and the USA are currently undertaking a major project aimed at improving the lives of men living with and beyond prostate cancer. As part of this project, Prostate Cancer UK is planning a strategy to provide further support to men in self-managing their condition. The Universities of Warwick and Sheffield are working with Prostate Cancer UK to provide the evidence for informing this strategy.

As part of this work, we need to know how prostate cancer teams around the country are currently assessing patients at different stages. In order to help us identify current practice relating to the identification of men’s needs, we are carrying out a short e-survey regarding the use of Holistic Needs Assessment instruments. We would like to hear from a range of staff involved in follow up care and monitoring and from as many prostate cancer services as possible. If you could spare 10 minutes of your time please complete the following questions.

Holistic Needs Assessment

A process of gathering and discussing information with the patient and/or carer/supporter in order to develop an understanding of what the person living with and beyond cancer knows, understands and needs. This holistic assessment is focused on the whole person, their entire well-being is discussed – physical, emotional, spiritual, mental, social, and environmental. The process culminates when the assessment results are used to inform a care plan.

Holistic Needs Assessment Tools

Holistic needs assessment tools aim to identify patients’ needs in all of these domains by means of a structured questionnaire. This questionnaire can be completed by the patient alone or with the help of an informal carer if necessary, or by a health care professional. These tools are distinct and have a different purpose from Patient reported Outcome Measures (PROMS), Quality of Life Instruments and Symptom Scales although there may be some questions which overlap with these.

 

Prostate Cancer UK is a registered charity in England and Wales (1005541) and in Scotland (SC039332). Registered company 2653887.


Please be aware that for all questions you may tick multiple answers
1. Do you currently use a Holistic Needs Assessment (HNA) tool?
2. If NO: What is the reason? (after completing this question please go to question 16)
3. If YES for which patients?
4. When do you carry out the HNA?
5. What is the purpose of the HNA?
6. How is the HNA completed?
7. Is this completed by?
8. Who sees the completed HNA?
9. Does the patient receive a copy of the HNA?
10. Where is the HNA stored?
11. Is the HNA repeated?
12. Which HNA tool (s) do you use?
13. Is the HNA part of?
14. Has use of the HNA?
15. Has the service development/innovation been evaluated?
16. Does your service use a risk stratified follow up pathway?
17. If YES to question 16 how are men at low risk monitored?
18. Does this include men on hormone treatment with stable PSA and symptoms?
19. Active surveillance with stable PSA and symptom?
20. Watchful waiting with stable PSA and symptom?
21. How are men at medium risk of recurrence followed up?
22. How useful do you think the HNA is to the patient?

Additional Questions

If the infromation is available to you please complete one or both of the following two questions.
What IT system do you use for managing care for cancer patients?
Whose policy does the HNA come under?

Thank you very much for taking part in our survey, your time and answers are very much appreciated.

As a small thank you for taking part in our survey, if you would like to be entered into our prize draw please leave your email address below (this will only be used to contact you if you win and will not be used for any other purpose).
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