Below you will find links to useful organisations and websites:

• Genetic Alliance UK
• Spinal Muscular Atrophy Support UK (formerly known as The Jennifer Trust for Spinal Muscular Atrophy)
• The SMA Trust
• Families of SMA (USA based)
• Down's Syndrome Association
• UK Screening Portal
• NHS information on Genetics
• Rare Genomics
• Jeans for Genes Day
• SMA Awareness
• ACT for SMA
• United Kingdom Thalassemia Society
• The Haemophilia Society
• The Fragile X Society
• Cystic Fibrosis Trust

Imagining Futures:

• Imagining Futures on Twitter
• Imagining Futures on Facebook