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Information for parents approached to take part in the screening pilot

Thank you for considering taking part in this study. On this page you will find information about the survey and interviews for parents and prospective parents who have been approached to take part in the SMA newborn screening pilot.

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Interviews

We would like to interview some of the people who complete this survey about their experiences and views, including people who agreed to take part in the SMA newborn screening pilot, people who decided not to take part and people who are undecided.

Interviews will take between 30 and an hour and will be anonymised.

Eligibility criteria: participants must be parental guardians approached to take part in SMA screening, live in the UK, and be able to communicate in English.


If you are interested in doing an interview or you would like more information, please email the team at .