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Information for members of the public

Thank you for considering taking part in this study. On this page you will find information about the survey and interviews for members of the public.

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Interviews

We would like to interview some members of the public to get a more detailed understanding of their views on newborn screening for Spinal Muscular Atrophy (no prior knowledge of screening or Spinal Muscular Atrophy is needed, as this information will be provided).

We would like to speak with people who agree with screening, people who disagree with it, and people who are undecided.

Everyone who takes part in an interview will receive a £20 voucher as a thank you.

Eligibility criteria: participants must be over 18 years old, live in the UK, and be able to communicate in English.

Interviews will be conducted online, or by phone and will last around an hour.

 
If you are interested in doing an interview or you would like more information, please email the team at .