Independent Scientific Advisory Committee (ISAC)
The scientific direction and progress of the InSPiRe project will be overseen by an Independent Scientific Advisory Committee. This comprises international clinical and non-clinical experts and patient group representatives. Members are selected for their expertise and ability to provide project oversight and represent key stakeholders in the project deliverables.
Purpose
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To oversee the direction and progress of the InSPiRe project, specifically providing expert advice on key project decisions
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To provide expert guidance on the relevance of the project work to key stakeholders including patients and the public
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To comment on the quality of project deliverables and the overall scientific work of the project
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To advise, and if appropriate assist with, dissemination and exploitation of project results
Membership
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Stephen Groft (Office of Rare Diseases Research, NIH)
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Rob Hemmings (Statistics Unit, MHRA)
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Ralf Herold (Paediatric Medicines, EMA)
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Gerard Nguyen Duc Long (Hopital Avicenne APHP and Rett Syndrome Europe)
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Gerard Pons (Professor of Clinical Pharmacology, INSERM)
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Kit Roes (Professor of Biostatistics, Utrecht, Co-ordinator ASTERIX project)
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Tsveta Schyns (EURORDIS)
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Nigel Stallard (InSPiRe project co-ordinator)
Additional members may be invited as required.