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ACCESSA - Understanding access to palliative care by ethnic minority groups in the UK: with a focus on South Asian communities in the Midlands and Leeds Bradford

As people get older, and come towards the end of their lives, they are more likely to experience diseases and unpleasant symptoms such as pain. Palliative care is branch of medicine that aims to help people have a good quality of life by controlling pain and other symptoms. However, some studies show that people from ethnic minorities may experience barriers, such language, which prevent them from getting medical treatment. Another group who may experience difficulties, is people with refugee or asylum-seeker status.

This study investigates access to palliative care for ethnic minority groups. It has a special focus on:

  • People from a South Asian background (Indian, Pakistani or Bangladeshi).
  • Refugees/asylum-seekers. Refugees/asylum-seekers may come from anywhere in the world, but this study will focus on those from South Asia and the Middle-East.

Funded by:

Academy of Medical Sciences (AMS)

Research team members:

Gemma Clarke, AMS Fellow, University of Leeds


John MacArtney, University of Warwick


March 2021 – February 2023


Dr John MacArtney

john dot macartney at warwick dot ac dot uk