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Sociology of dying and the aftermath (bereavement), palliative care and hospices.
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Social and political theories and conceptualisations of illness, dying, palliative care.
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Sociology of Covid-19 and the pandemic's legacy for those made vulnerable by it.
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Sociology of diagnosis, living-with (experiences of), and dying from cancer.
I am a sociologist of dying, palliative care, health and illness. I have expertise in a range of qualitative approaches including ethnography, discourse and narrative analysis, secondary analysis, mixed methods and international qualitative comparisons. My work is informed by and seeks to develop social and political theory.
My research has explored: the effects of Covid-19 on palliative care, including "pandemic delay"; assessments of complex palliative care needs in the transitions to and discharge from specialist palliative care; bereavement support, including Men's Sheds; and, community approaches to palliative care. I have had leading roles in projects that have explored health inequities and forms of mutual, social and community support for people with life-limiting conditions and for those who care for them. My PhD explored experiences of living with and beyond cancer and using Complementary and Alternative Medicines (CAM) and self-health.
My Marie Curie Fellowship aims to promote research activities within Marie Curie's services with the goal of improving palliative and end of life care for people with life-limiting illnesses. This involves developing, facilitating and coordinating research projects with local, national and international academic and clinical partners.
Current research studies I co-lead:
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'Improving patients, carers, and primary care healthcare professionals' experiences of discharge communication from specialist palliative care to community settings: a qualitative interview study', funded by NIHR RfPB and led by Dr Katherine Weetman, University of Birmingham.
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'Dying-in-delay: Understanding the implications of pandemic delays for/at the end of life', funded by Australian Research Council, led by Prof Emma Kirby, UNSW.
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'What social science and humanities research themes appear in data gathered from the JLA priority setting in palliative and end of life care?', funded by Marie Curie, led by Prof Erica Borgstrom (Open University).
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'Improving communication of prognostic uncertainty in palliative and end of life care contexts: A realist review', funded by Marie Curie, led by Dr Simon Etkind, University of Cambridge.
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'Re-contextualising failure in academic research culture: Exploring how non-success has been understood and identifying recommendations to improve wellbeing', funded by Enhancing Research Culture Fund (internal), led by Dr Nicky Thomas, University of Warwick.
Engagement and impact
As well as my academic publications my work has sought to engage policy makers, stakeholders and the public. I have written editorials and opinion pieces about the pandemic for clinical audiences and produced recommendations for clinical practice, policy makers, and a series of films for public audiences on the impact of Covid-19 on hospice palliative care. Beyond covid my research has led to the development of a 'tool kit' to support hospices thinking of starting their own Men's Shed group and co-authoring of a thought piece about the language of 'loved ones' in healthcare. I also co-authored a blog that was in the EAPC's top-10 in 2023 on the emotional impact of interpreting conversations in palliative care.
Teaching and supervision
I co-lead 'Transdisciplinary perspectives: local and global problems in health' module (MD3B6) on the Health and Medical Sciences BSc.
I am available to supervise medical, Masters and Doctoral (PhD) students.
Current doctoral students:
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Bethany Linder
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Pretty Manyimo
Completed doctoral students
- Markus Schichtel (Oxford)
I was awarded my PhD in Sociology in 2011 from the London School of Economics and Political Science, UK, and have held posts at the University of Queensland, Australia, and the University of Oxford, UK. In 2018 I was appointed as a Marie Curie Fellow at the University of Warwick. I am also a Senior Visiting Fellow, School of Social Sciences, Faculty of Arts, Design, and Architecture at the University of New South Wales (UNSW).
I have successfully led or co-led several grants and Fellowships totalling over one-million pounds awarded by a range of bodies including UKRI Economic and Social Research Council (ESRC), the National Institute of Health and Care Research (NIHR), Marie Curie (UK), and Australian Research Council.
I lead the 'Social Science in Health and Illness Network' in Warwick Applied Health and am the theme lead for 'life-limiting conditions and dying in the community' in the Academic Primary Care network. In 2021 I co-founded the Building a Research Hub for Palliative Care in Birmingham and the West Midlands (BRHUmB) with Prof Cara Bailey and am a member of Research in End of life, Advanced illness, Complex Health and social care (REACH) group.
I sit on Health Sociology Review's Editorial Advisory Board and am a full member of the British Sociological Association.
- Van Toorn, G., Kirby, Emma R., Hamilton, M., MacArtney, J. I., 2024. What socio-cultural, emotional and relational factors shape older people?s experiences of death and dying in residential aged care? A scoping review. Ageing and Society, pp. 1-24
- Jones, Rachelle, Dale, Jeremy, MacArtney, John I., 2023. Challenges experienced by general practitioners when providing palliative care in the UK : a systematic qualitative literature review. BJGP Open, 7 (2)
- McLoughlin, Bethany, Atherton, Helen, MacArtney, John I., Dale, Jeremy, 2023. Online support groups for carers of people living with dementia : an investigation of videoconferencing support groups in lockdown. Dementia, 22 (3), pp. 561-575
- Borgstrom, Erica, Driessen, Annelieke, Krawczyk, Marian, Kirby, Emma, MacArtney, John I., Almack, Kathryn, 2023. Grieving academic grant rejections : examining funding failure and experiences of loss. The Sociological Review
- Nawaratne, Sashiprabha Dulanjalee, Dale, Jeremy, MacArtney, John I., Mitchell, Sarah, Rimui, Pauline, Hirtenlehner, Katrin, 2023. Compassionate communities and cities in low and middle-income countries : a systematic review protocol to identify transferrable lessons for implementation in the primary care context. International Journal of College of Palliative Medicine of Sri Lanka, 1 (1)
- Bailey, Cara, Guo, Ping, MacArtney, John I., Finucane, Anne, Meade, Richard, Swan, Susan, Wagstaff, Ellie, 2023. "Palliative care is so much more than that? : a qualitative study exploring experiences of hospice staff and bereaved carers during the COVID-19 pandemic. Frontiers in Public Health, 11
- Hancox, Jennifer A., McKiernan, Clare F., Martin, Alice L., Tomas, Jon, MacArtney, John I., 2023. The emotional effects on professional interpreters of interpreting palliative care conversations for adult patients : a rapid review. Palliative Medicine, 37 (7), pp. 931-946
- 'Weetman, Katharine, 'Dale, Jeremy, 'Mitchell, Sarah J., 'Ferguson, Claire, 'Finucane, Anne M., 'Buckle, Peter, 'Arnold, Elizabeth, 'Clarke, Gemma, 'Karakitsiou, Despoina-Elvira, 'McConnell, Tracey, 'Sanyal, Nikhil, 'Schuberth, Anna, 'Tindle, Georgia, 'Perry, Rachel, 'Grewal, Bhajneek, 'Patynowska, Katarzyna A., 'MacArtney, John I., 2022. 'Communication of palliative care needs in discharge letters from hospice providers to primary care : a multisite sequential explanatory mixed methods study. BMC Palliative Care, 21 (1)
- Schichtel, Markus, Wee, Bee, MacArtney, John I., Collins, Sarah, 2022. Clinician barriers and facilitators to heart failure advance care plans : a systematic literature review and qualitative evidence synthesis. BMJ Supportive & Palliative Care, 12
- MacArtney, John I., Eccles, Abi, Fleming, Joanna, Grimley, Catherine, Dale, Jeremy, Almack, Kathryn, Mayland, Catriona, Mitchell, Sarah, Driscoll, Ruth, Hammond, Rebecca, Tatnell, Lynn, Roberts, Lesley, 2021. What do we know about the impact of the Covid-19 pandemic on hospices? A collaborative multi-stakeholder knowledge synthesis. AMRC Open Research, 3
- 'Kirby, Emma R., 'Broom, Alex, 'MacArtney, John I., 'Lewis, Sophie, 'Good, Phillip, 2021. 'Hopeful dying? The meanings and practice of hope in palliative care family meetings. Social Science & Medicine, 291
- Schichtel, Markus, MacArtney, John I., Wee, Bee, Boylan, Anne-Marie, 2021. Implementing advance care planning in heart failure : a qualitative study of primary healthcare professionals. British Journal of General Practice
- Finucane, Anne, Swenson, Connie, MacArtney, John I., Perry, Rachel, Lamberton, Hazel, Hetherington, Lucy, Graham-Wisener, Lisa, Murray, Scott, Carduff, Emma, 2021. What makes palliative care needs ?complex?? A multisite sequential explanatory mixed methods study of patients referred for specialist palliative care. BMC Palliative Care, 20
- Parsons, Joanne, Dale, Jeremy, MacArtney, John I., Nanton, Veronica, 2021. Caring for each other : a rapid review of how mutual dependency is challenged by advanced illness. International Journal of Care and Caring, 5 (3), pp. 509-527
- Andersen, R. S., MacArtney, John I., Rasmussen, B. M., Bernhardson, B. M., Hajdarevic, S., Malmström, M., Ziebland, S., 2020. Caring as sharing : negotiating the moral boundaries of receiving care. Critical Public Health, 30 (5), pp. 567-576
- MacArtney, John I., Andersen, R. S., Malmström, M., Rasmussen, B., Ziebland, S., 2020. The convivial and the pastoral in patient-doctor relationships : a multi-country study of patient stories of care, choice and medical authority in cancer diagnostic processes. Sociology of Health and Illness, 42 (4), pp. 844-861
- Ziebland, Sue, Rasmussen, Birgit, MacArtney, John I., Hajdarevic, Senada, Sand Andersen, Rikke, 2019. How wide is the Goldilocks Zone in your health system?. Journal of Health Services Research & Policy, 24 (1), pp. 52-56
- Evans, Julie, MacArtney, John I., Bankhead, Clare, Albury, Charlotte, Jones, Daniel, Ziebland, Sue, Nicholson, Brian D., 2019. How do GPs and patients share the responsibility for cancer safety netting follow-up actions? A qualitative interview study of GPs and patients in Oxfordshire, UK. BMJ Open, 9 (9)
- Evans, Julie, Ziebland, Sue, MacArtney, John I., Bankhead, Clare R., Rose, Peter W., Nicholson, Brian D., 2018. GPs' understanding and practice of safety netting for potential cancer presentations : a qualitative study in primary care. British Journal of General Practice
- Malmström, M., Rasmussen, B. H., Bernhardson, B. M., Hajdarevic, S., Eriksson, L. E., Sand Andersen, R., MacArtney, J. I., 2018. "It is important that the process goes quickly, isn't it?? A qualitative multi-country study of colorectal or lung cancer patients' narratives of the timeliness of diagnosis and quality of care. European Journal of Oncology Nursing, 34, pp. 82-88
- MacArtney, John I., Malmström, Marlene, Overgaard Nielsen, Trine, Evans, Julie, Bernhardson, Britt-Marie, Hajdarevic, Senada, Chapple, Alison, Eriksson, Lars E., Locock, Louise, Rasmussen, Birgit, Vedsted, Peter, Tishelman, Carol, Andersen, Rikke Sand, Ziebland, Sue, 2017. Patients' initial steps to cancer diagnosis in Denmark, England and Sweden : what can a qualitative, cross-country comparison of narrative interviews tell us about potentially modifiable factors?. BMJ Open, 7 (11)
- MacArtney, John I., Broom, Alex, Kirby, Emma, Good, Phillip, Wootton, Julia, 2017. The liminal and the parallax. Qualitative Health Research, 27 (5), pp. 623-633
- Kirby, Emma, Kenny, Katherine, Broom, Alex, MacArtney, John I., Good, Phillip, 2017. The meaning and experience of bereavement support : a qualitative interview study of bereaved family caregivers. Palliative and Supportive Care, pp. 1-10
- MacArtney, John I., Broom, Alex, Kirby, Emma, Good, Phillip, Wootton, Julia, Adams, Jon, 2016. Locating care at the end of life : burden, vulnerability, and the practical accomplishment of dying. Sociology of Health & Illness, 38 (3), pp. 479-492
- Broom, Alex, Kirby, Emma, Kenny, Katherine, MacArtney, John I., Good, Phillip, 2016. Moral ambivalence and informal care for the dying. The Sociological Review, 64 (4), pp. 987-1004
- MacArtney, John I., 2016. Balancing exercises : subjectivised narratives of balance in cancer self-health. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 20 (4), pp. 329-345
- MacArtney, John I., Wahlberg, Ayo, 2014. The problem of complementary and alternative medicine use today. Qualitative Health Research, 24 (1), pp. 114-123
- Cox, W. M., Rosenberg, H., Hodgins, H., MacArtney, John I., Maurer, K. A., 2004. United Kingdom And United States healthcare providers' recommendations of abstinence versus controlled drinking. Alcohol and Alcoholism, 39 (2), pp. 130-134
- MacArtney, John I., 2015. At the will of our stories. Tansley, L.; Maftei, M. (eds.), Writing creative non-fiction : determining the form., Canterbury, UK., Gylphi
- 'Mayland, C., 'Mitchell, S., 'Flemming, K., 'Tatnell, L., 'Roberts, L., 'MacArtney, John I., 2022. 'Editorial : Inequitable access to hospice care - action is needed now. BMJ Supportive & Palliative Care, BMJ Group
- MacArtney, John I., 2013. Review of : DES daughters : embodied knowledge and the transformation of women's health politics by Bell, S. E.. Medical Sociology Online, BSA Publications Ltd
Title | Funder | Award start | Award end |
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Exploring how understanding contexts, people or needs as 'complex'is creating inequities in practices and experiences of a good death in palliative car (Warwick Industrial Fellowship) | Marie Curie Cancer Care | 09 Jan 2023 | 08 Jul 2026 |
Marie Curie Cancer Care Senior Research Fellowship extension linked to 66103 and 55740 | Marie Curie Cancer Care | 01 Mar 2023 | 28 Feb 2026 |
Improving patients, carers, and primary care healthcare professionals' experiences of discharge communication from specialist palliative care to community settings: a qualitative interview study Recost 75381 | National Institute for Health Research (NIHR DoH) | 01 Jan 2024 | 31 Mar 2025 |
Identifying research themes for social sciences and humanities research into dying and palliative care: Secondary analysis of James Lind Alliance refresh | Marie Curie Cancer Care | 01 Mar 2024 | 31 Jan 2025 |
Palliative and End of Life Care Research Partnerships Grant ? Building a Research Hub for Palliative Care Quality in the West Midlands | National Institute for Health Research (NIHR DoH) | 03 Jan 2022 | 31 Mar 2023 |
Marie Curie Cancer Care Senior Research Fellowship extension - link to 55740 | Marie Curie Cancer Care | 01 Mar 2021 | 28 Feb 2023 |
Secondary analysis of bereavement commission evidence | Marie Curie Cancer Care | 01 Dec 2021 | 31 Oct 2022 |
The impact and implications of Covid-19 on the relational, social, and healthcare experiences of hospice care in the West Midlands | UK Research and Innovation | 24 Mar 2021 | 31 May 2022 |
Impact of Covid on Hospices study related to 69522 and funded under 70838 | National Lottery | 01 Sept 2021 | 28 Feb 2022 |
Communication of palliative needs in discharge letters from specialist to primary palliative care: A multisite sequential explanatory mixed methods study | Marie Curie Cancer Care | 01 Apr 2021 | 31 Dec 2021 |