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ICOH - The impact and implications of Covid-19 on the relational, social, and healthcare experiences of hospice care in the West Midlands

Following the countrywide lockdown in March 2020 hospices had to rapidly change the way they worked, how they cared for patients, and how they supported families. However, little is known about how the Covid-19 pandemic has affected hospice service provision, nor their impact on the lived experiences of receiving or providing hospice care during the pandemic. The aim of the study is to identify nationally relevant recommendations to mitigate the uneven relational, social and healthcare impacts of Covid-19 upon hospice services for vulnerable service users and those that care for them.

This mixed-methods study uses two data collection methods: the collection of already existing quantitative and qualitative data and outputs created by the hospices in response to the pandemic (grey evidence); and, interviews with patients, carers, hospice staff, and with those responsible for hospice service design and provision.

We will use a transdisciplinary, multi-stakeholder, collaborative approach to synthesise and interpret the evidence. We will work with Marie Curie, as well as local and national stakeholders, to develop a series of reports to provide insight and understanding into changes that have taken place, as well as provide recommendations for local and national policy and practice. These reports will be issued throughout the project, to hospice service users, stakeholders, political leaders and civil society groups.

Funded by

UKRI (ESRC)

Research team members

Chief Investigator: Dr John I MacArtney, University of Warwick

Co-Investigators: Professor Jeremy Dale, University of Warwick, Professor Kathryn Almack, University of Hertfordshire, Dr Catriona Rachel Mayland, University of Sheffield, Dr Sarah Mitchell, University of Sheffield

Senior Research Fellow: Dr Joanna Fleming, University of Warwick

Research Fellow: Dr Abi Eccles, University of Warwick 

Collaborators

Marie Curie

Dates

24 March 2021 – 23 March 2022

Taking part in the ICoH Study

For further information about taking part in an interview for the ICoH Study, please click here.

If you have any further questions, you can contact the study team via email icoh@warwick.ac.uk or phone: 02476 523164