Information for participants from the SMA community
Thank you for considering taking part in this study. On this page you will find information about the survey and interviews for members of the SMA community, this includes people living with SMA, and family members of people who have (or had) SMA.
The surveys have now closed - thank you to everyone who took part. Please check our webpage for updates on our results and publications, or you can contact us at
Interviews
The interviews has now been completed - thank you to everyone who took part. Please check our webpage for updates on our results and publications, or you can contact us at