Job Title
Professor (Research Focussed)
Department
WMS - Health Sciences
Phone
024 7615 0622
Research Interests
Sophie Staniszewska leads the Patient and Public Involvement (PPI) and Patient Experiences Programme at the RCN Research Institute, Warwick Medical School, University of Warwick. Previously Sophie was Director of Research at the National Centre for Involvement and Director of Graduate Studies in the School of Health and Social Studies. Sophie is a member of the National Quality Board Patient Experiences Sub-group. Sophie has carried out a wide range of studies. Sophie recently completed a scoping study for NICE which developed the Warwick Patient Experiences Framework that informed the NICE Patient Experiences Guidance. Sophie also led a systematic review of the impact of patient and public involvement on health and social care research, funded by the UKCRC. Sophie is currently working with EQUATOR to develop the first international guidance to enhance the quality of PPI reporting. Sophie also led the POPPY Project which examined parents? experiences of having a pre-term baby (www.poppy-project.org.uk). Sophie recently chaired the NICE Patient Experiences Guideline and Quality Standard. Sophie is a member of the Internal Methods Advisory Group at NICE. Sophie is also a member of the Research Excellence Framework 2014 Public Health, Health Services and Primary Care Panel. Until recently Sophie chaired the Evidence, Knowledge and Learning Group of INVOLVE and was a member of the Main Group of INVOLVE. Sophie is now an INVOLVE Associate having completed her term of office. Sophie is a member of the NETCC PPI Group. Sophie is also a member of the Health Technology Assessment International Patient/Citizen Involvement Steering Group and co-chairs the Methods and Impact Group. Sophie reviews for a range of funding bodies and international journals, is on the editorial board of the International Journal for Quality in HealthCare, Patient Experiences Journal, The Patient: Patient Centered Outcomes Research and supervises a number of PhD students.
Biography
Public Health, Health Services and Primary Care REF Panel 2014
Member of National Quality Board Patient Experiences Sub-group
NICE Patient Experiences Guideline Group Chair
Associate member of INVOLVE
Member of Health Technology Assessment International Citizen and Patient Involvement Steering Group
Co-chair of Health Technology Assessment Citizen and Patient Involvement Methods and Impact Sub-committee
- Hoverd, Eleanor, Staniszewska, Sophie, Dale, Jeremy, Spencer, Rachel, Devrell, Anne, Khan, Dena, Lamouline, Carrol, Saleem, Sanya, Smith, Pam, 2024. Co-producing an online patient public community research hub : a qualitative study exploring the perspectives of national institute for health research (NIHR) research champions in England. Research Involvement and Engagement, 10 (1)
- Owen, Rhiannon K., Lyons, Jane, Akbari, Ashley, Guthrie, Bruce, Agrawal, Utkarsh, Alexander, Daniel C., Azcoaga-Lorenzo, Amaya, Brookes, Anthony J., Denaxas, Spiros, Dezateux, Carol, Fagbamigbe, Adeniyi Francis, Harper, Gill, Kirk, Paul D. W., Özyi?it, Eda Bilici, Richardson, Sylvia, Staniszewska, Sophie, McCowan, Colin, Lyons, Ronan A., Abrams, Keith R., 2023. Effect on life expectancy of temporal sequence in a multimorbidity cluster of psychosis, diabetes, and congestive heart failure among 1·7 million individuals in Wales with 20-year follow-up : a retrospective cohort study using linked data. The Lancet Public Health, 8 (7), pp. E535-E545
- Munce, Sarah Ep, Steele Gray, Carolyn, Pomeroy, Beverley Claire, Bayley, Mark, Kokorelias, Kristina Marie, Luong, Dorothy, Biddiss, Elaine, Cave, Trish, Bragge, Peter, Chew-Graham, Carolyn A., Colquhoun, Heather, Dadich, Ann, Dainty, Katie N., Elliott, Mark, Feng, Patrick, Goldhar, Jodeme, Hamilton, Clayon B., Harvey, Gillian, Kastner, Monika, Kothari, Anita et al (Select to open full list), 2023. Development of the preferred components for co-design in research guideline and checklist : protocol for a scoping review and a modified Delphi process. JMIR Research Protocols, 12
- 'Husereau, Don, 'Drummond, Michael, 'Augustovski, Federico, 'de Bekker-Grob, Esther, 'Briggs, Andrew H., 'Carswell, Chris, 'Caulley, Lisa, 'Chaiyakunapruk, Nathorn, 'Greenberg, Dan, 'Loder, Elizabeth, 'Mauskopf, Josephine, 'Mullins, C. Daniel, 'Petrou, Stavros, 'Pwu, Raoh-Fang, 'Staniszewska, Sophie, 2022. 'Consolidated Health Economic Evaluation Reporting Standards 2022 (CHEERS 2022) statement : updated reporting guidance for health economic evaluations. Value in Health, 25 (1), pp. 3-9
- 'Hickey, Gary, 'Porter, Katie, 'Tembo, Doreen, 'Rennard, Una, 'Tholanah, Martha, 'Beresford, Peter, 'Chandler, David, 'Chimbari, Moses, 'Coldham, Tina, 'Dikomitis, Lisa, 'Dziro, Biggy, 'Ekiikina, Peter O., 'Khattak, Maria I., 'Montenegro, Cristian R., 'Mumba, Noni, 'Musesengwa, Rosemary, 'Nelson, Erica, 'Nhunzvi, Clement, 'Ramirez, Caroline M., 'Staniszewska, Sophie, 2022. 'What does ?good? community and public engagement look like? Developing relationships with community members in global health research. Frontiers in Public Health, 9
- 'Husereau, Don, 'Drummond, Michael, 'Augustovski, Federico, 'de Bekker-Grob, Esther, 'Briggs, Andrew H., 'Carswell, Chris, 'Caulley, Lisa, 'Chaiyakunapruk, Nathorn, 'Greenberg, Dan, 'Loder, Elizabeth, 'Mauskopf, Josephine, 'Mullins, C. Daniel, 'Stavros, Petrou, 'Pwu, Raoh-Fang, 'Staniszewska, Sophie, 2022. 'Consolidated health economic evaluation reporting standards 2022 (CHEERS 2022) statement : updated reporting guidance for health economic evaluations. Health Policy OPEN, 3
- 'Price, Amy, 'Clarke, Mike, 'Staniszewska, Sophie, 'Chu, Larry, 'Tembo, Doreen, 'Kirkpatrick, Marjorie, 'Nelken, Yasmine, 2022. 'Patient and public involvement in research : a journey to co-production. Patient Education and Counseling, 105 (4), pp. 1041-1047
- 'Ho, Iris S. S., 'Azcoaga-Lorenzo, Amaya, 'Akbari, Ashley, 'Davies, Jim, 'Khunti, Kamlesh, 'Kadam, Umesh T., 'Lyons, Ronan A., 'McCowan, Colin, 'Mercer, Stewart W., 'Nirantharakumar, Krishnarajah, 'Staniszewska, Sophie, 'Guthrie, Bruce, 2022. 'Measuring multimorbidity in research : Delphi consensus study. BMJ Medicine, 1 (1)
- Husereau, Don, Drummond, Michael, Augustovski, Federico, de Bekker-Grob, Esther W., Briggs, Andrew H., Carswell, Chris, Caulley, Lisa, Chaiyakunapruk, Nathorn, Greenberg, Dan, Loder, Elizabeth, Mauskopf, Josephine, Mullins, C. Daniel, Petrou, Stavros, Pwu, Raoh-Fang, Staniszewska, Sophie, 2022. Consolidated Health Economic Evaluation Reporting Standards (CHEERS) 2022 explanation and elaboration : a report of the ISPOR CHEERS II good practices task force. Value in Health, 25 (1), pp. 10-31
- Husereau, Don, Drummond, Michael, Augustovski, Federico, de Bekker-Grob, Esther, Briggs, Andrew H., Carswell, Chris, Caulley, Lisa, Chaiyakunapruk, Nathorn, Greenberg, Dan, Loder, Elizabeth, Mauskopf, Josephine, Mullins, C. Daniel, Petrou, Stavros, Pwu, Raoh-Fang, Staniszewska, Sophie, 2022. Consolidated Health Economic Evaluation Reporting Standards 2022 (CHEERS 2022) Statement : updated Reporting Guidance for Health Economic Evaluations. Applied Health Economics and Health Policy, 20 (2), pp. 213-221
- Hoverd, Eleanor, Hawker-Bond, George, Staniszewska, Sophie, Dale, Jeremy, 2022. Factors influencing decisions about whether to participate in health research by people of diverse ethnic and cultural backgrounds : a realist review. BMJ Open, 12 (5)
- Husereau, Don, Drummond, Michael, Augustovski, Federico, de Bekker-Grob, Esther, Briggs, Andrew H., Carswell, Chris, Caulley, Lisa, Chaiyakunapruk, Nathorn, Greenberg, Dan, Loder, Elizabeth, Mauskopf, Josephine, Mullins, C. Daniel, Petrou, Stavros, Pwu, Raoh-Fang, Staniszewska, Sophie, 2022. Consolidated Health Economic Evaluation Reporting Standards 2022 (CHEERS 2022) statement : updated reporting guidance for health economic evaluations. Journal of Managed Care & Specialty Pharmacy, 28 (2), pp. 146-155
- Ahmed, Imran, Dhaif, Fatema, Khatri, Chetan, Parsons, Nicholas R., Hutchinson, Charles E., Staniszewska, Sophie, Price, Andrew, Metcalfe, Andrew J., 2022. The meniscal tear outcome (METRO) review : a systematic review summarising the clinical course and outcomes of patients with a meniscal tear. The Knee, 38, pp. 117-131
- 'Staniszewska, Sophie, 'Söderholm Werkö, Sophie, 2021. 'Mind the evidence gap : the use of patient-based evidence to create ?complete HTA? in the twenty-first century. International Journal of Technology Assessment in Health Care, 37 (1)
- Ahmed, Imran, Radhakrishnan, Anand, Khatri, Chetan, Staniszewska, Sophie, Hutchinson, Charles E., Parsons, Nicholas R., Price, Andrew R. G., Metcalfe, Andrew J., 2021. Meniscal tears are more common than previously identified, however, less than a quarter of people with a tear undergo arthroscopy. Knee Surgery, Sports Traumatology, Arthroscopy, 29, pp. 3892-3898
- Staniszewska, Sophie, Hill, Edward M., Grant, Richard, Grove, Peter, Porter, Jarina, Shiri, Tinevimbo, Tulip, Sue, Whitehurst, Jane, Wright, Claire, Datta, Samik, Petrou, Stavros, Keeling, Matthew James, 2021. Developing a framework for public involvement in mathematical and economic modelling : bringing new dynamism to vaccination policy recommendations. The Patient - Patient-Centered Outcomes Research, 14, pp. 435-445
- Hoverd, Eleanor, Staniszewska, Sophie, Dale, Jeremy, 2021. The informed consent process in health research with under-served populations : a realist review protocol.. Systematic Reviews, 10 (1)
- Sanatinia, Rahil, Burns, Alistair, Crome, Peter, Gordon, Fabiana, Hood, Chloe, Lee, William, Quirk, Alan, Seers, Kate, Staniszewska, Sophie, Zafarani, Gemma, Crawford, Mike, 2021. Factors associated with shorter length of admission among people with dementia in England and Wales : retrospective cohort study. BMJ Open, 11 (10)
- Sanatinia, Rahil, Crawford, Mike J., Quirk, Alan, Hood, Chloe, Gordon, Fabiana, Crome, Peter, Staniszewska, Sophie, Zafarani, Gemma, Hammond, Sara, Burns, Alistair, Seers, Kate, 2020. Identifying features associated with higher-quality hospital care and shorter length of admission for people with dementia : a mixed-methods study. Health Services and Delivery Research, 8 (22), pp. 1-92
- Weich, Scott, Fenton, Sarah-Jane Hannah, Staniszewska, Sophie, Canaway, Alastair, Crepaz-Keay, David, Larkin, Michael, Madan, Jason, Mockford, Carole, Bhui, Kamaldeep, Newton, Elizabeth, Croft, Charlotte, Foye, Una, Cairns, Aimee, Ormerod, Emma, Jeffreys, Stephen, Griffiths, Frances, 2020. Using patient experience data to support improvements in inpatient mental health care : the EURIPIDES multimethod study. Health Services and Delivery Research, 8 (21), pp. 1-338
- Staniszewska, Sophie, Mockford, Carole, Chadburn, Greg, Fenton, Sarah-Jane Hannah, Bhui, Kamaldeep, Larkin, Michael, Newton, Elizabeth, Crepaz-Keay, David, Griffiths, Frances, Weich, Scott, 2019. Experiences of inpatient mental health services : systematic review. The British Journal of Psychiatry, 214 (6), pp. 329-338
- Data, Samik, Pink, Joshua, Medley, Graham, Petrou, Stavros, Staniszewska, Sophie, Underwood, Martin, Sonnenberg, Pam, Keeling, Matthew James, 2019. Assessing the cost-effectiveness of HPV vaccination strategies for adolescent girls and boys in the UK. BMC Infectious Diseases, 19
- Boylan, Anne-Marie, Locock, Louise, Thompson, Richard, Staniszewska, Sophie, 2019. ?About sixty percent I want to do it'. Health researchers? attitudes to, and experiences of, patient and public involvement (PPI) : a qualitative interview study. Health Expectations, 22 (4), pp. 721-730
- Gold, E. Richard, Ali-Khan, Sarah E., Allen, Liz, Ballell, Lluis, Barral-Netto, Manoel, Carr, David, Chalaud, Damien, Chaplin, Simon, Clancy, Matthew S., Clarke, Patricia, Cook-Deegan, Robert, Dinsmore, A. P., Doerr, Megan, Federer, Lisa, Hill, Steven A., Jacobs, Neil, Jean, Antoine, Jefferson, Osmat Azzam, Jones, Chonnettia, Kahl, Linda J. et al (Select to open full list), 2019. An open toolkit for tracking open science partnership implementation and impact. Gates Open Research, 3
- Boylan, Anne-Marie, Locock, Louise, Thomson, Richard, Staniszewska, Sophie, 2019. ?About sixty per cent I want to do it? : Health researchers' attitudes to, and experiences of, patient and public involvement (PPI)?A qualitative interview study. Health Expectations
- Staniszewska, Sophie, Stephens, Richard, Flemyng, Ella, 2018. Developing the infrastructure for patient review in academic journals. Research Involvement and Engagement, 4 (1)
- Currie, Graeme, Croft, Charlotte, Chen, Yaru, Kiefer, Tina, Staniszewska, Sophie, Lilford, Richard, 2018. The capacity of health service commissioners to use evidence: a case study. Health Services and Delivery Research, 6 (12)
- Schroter, Sara, Price, Amy, Flemyng, Ella, Demaine, Andrew, Elliot, Jim, Harmston, Rebecca R., Richards, Tessa, Staniszewska, Sophie, Stephens, Richard, 2018. Perspectives on involvement in the peer-review process : surveys of patient and public reviewers at two journals. BMJ Open, 8 (9)
- Price, Amy, Schroter, Sara, Snow, Rosamund, Hicks, Melissa, Harmston, Rebecca, Staniszewska, Sophie, Parker, Sam, Richards, Tessa, 2018. Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal : a descriptive study. BMJ Open, 8 (3)
- Wilson, P. M., Mathie, E., Poland, F., Keenan, J., Howe, A., Munday, D., Kendall, S., Cowe, M., Staniszewska, Sophie, Goodman, C., 2018. How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation. Journal of Health Services Research and Policy, 23 (2), pp. 98-106
- Weich, Scott, Fenton, Sarah-Jane Hannah, Bhui, Kamaldeep, Staniszewska, Sophie, Madan, Jason, Larkin, Michael, Newton, Elizabeth, Crepaz-Keay, David, Canaway, Alastair, Croft, Charlotte, Griffiths, Frances, 2018. Realist evaluation of the use of patient experience data to improve the quality of inpatient mental health care (EURIPIDES) in England : study protocol. BMJ Open, 8 (6)
- Staniszewska, Sophie, Denegri, Simon, Matthews, Rachel, Minogue, Virginia, 2018. Reviewing progress in public involvement in NIHR research : developing and implementing a new vision for the future. BMJ Open, 8
- Weeks, Laura, Polisena, Julie, Scott, Anna Mae, Holtorf, Anke-Peggy, Staniszewska, Sophie, Facey, Karen, 2017. Evaluation of patient and public involvement initiatives in health technology assessment : a survey of international agencies. International Journal of Technology Assessment in Health Care, 33 (6), pp. 715-723
- Staniszewska, Sophie, Brett, Jo, Simera, I., Seers, Kate, Mockford, Carole, Goodlad, S., Altman, D. G., Moher, David, Barber, R., Denegri, S., Entwistle, A., Littlejohns, P., Morris, C., Suleman, Rashida, Thomas, V., Tysall, C., 2017. GRIPP2 reporting checklists : tools to improve reporting of patient and public involvement in research. BMJ, 358
- Brett, Jo, Staniszewska, Sophie, Simera, Iveta, Seers, Kate, Mockford, Carole, Goodlad, Susan, Altman, Doug, Moher, David, Barber, Rosemary, Denegri, Simon, Entwistle, Andrew Robert, Littlejohns, Peter, Morris, Christopher, Suleman, Rashida, Thomas, Victoria, Tysall, Colin, 2017. Reaching consensus on reporting patient and public involvement (PPI) in research : methods and lessons learned from the development of reporting guidelines. BMJ Open, 7 (10)
- Haywood, Kirstie L., Brett, Jo, Tutton, Elizabeth, Staniszewska, Sophie, 2017. Patient-reported outcome measures in older people with hip fracture : a systematic review of quality and acceptability. Quality of Life Research, 26 (4), pp. 799-812
- Weeks, Laura, Polisena, Julie, Scott, Anna Mae, Holtorf, Anke-Peggy, Staniszewska, Sophie, Facey, Karen, 2017. Valuation of patient and public involvement initiatives in health technology assessment : a survey of international agencies. International Journal of Technology Assessment in Health Care, pp. 1-9
- Mockford, Carole, Seers, Kate, Murray, Matt, Oyebode, Jan, Clarke, Rosemary, Staniszewska, Sophie, Suleman, Rashida, Boex, Sue, Diment, Yvonne, Grant, Richard, Leach, Jim, Sharma, Uma, 2017. The development of service user-led recommendations for health and social care services on leaving hospital with memory loss or dementia - the SHARED study. Health Expectations, 20 (3), pp. 495-507
- Locock, Louise, Boylan, Anne-Marie, Snow, Rosamund, Staniszewska, Sophie, 2017. The power of symbolic capital in patient and public involvement in health research. Health Expectations, 20 (5), pp. 836-844
- Sujan, Mark-Alexander, Howard-Franks, Hannah, Swann, Garry, Soanes, Kirsti, Pope, Catherine, Crouch, Robert, Staniszewska, Sophie, Maxwell, Elaine, Huang, Huayi, Cooke, Matthew, 2017. Impact of advanced autonomous non-medical practitioners in emergency care : protocol for a scoping study. BMJ Open, 7 (1)
- Staniszewska, Sophie, Brett, Jo, Simera, I., Seers, Kate, Mockford, Carole, Goodlad, S., Altman, D. G., Moher, David, Barber, R., Denegri, S., Entwistle, A., Littlejohns, P., Morris, C., Suleman, Rashida, Thomas, V., Tysall, C., 2017. GRIPP2 reporting checklists : tools to improve reporting of patient and public involvement in research. Research Involvement and Engagement, 3 (13)
- Haywood, Kirstie L., Lyddiatt, Anne, Brace-McDonnell, Samantha J., Staniszewska, Sophie, Salek, Sam, 2017. Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research : an international, multiple-stakeholder perspective. Quality of Life Research, 26 (6), pp. 1393-1404
- Karasouli, Eleni, Munday, Dan, Bailey, Cara, Staniszewska, Sophie, Hewison, Alistair, Griffiths, Frances, 2016. Qualitative critical incident study of patients' experiences leading to emergency hospital admission with advanced respiratory illness. BMJ Open, 6 (2), pp. 1-10
- Hunter, D. J., Kieslich, Katharina, Littlejohns, Peter, Staniszewska, Sophie, Tumilty, Emma, Weale, Albert, Williams, Iestyn, 2016. Public involvement in health priority setting : future challenges forpolicy, research and society. Journal of Health Organization and Management, 30 (5), pp. 796-808
- Mockford, Carole, Murray, Matt, Seers, Kate, Oyebode, Jan, Grant, Richard, Boex, Sue, Staniszewska, Sophie, Diment, Yvonne, Leach, Jim, Sharma, Uma, Clarke, Rosemary, Suleman, Rashida, 2016. A SHARED study-the benefits and costs of setting up a health research study involving lay co-researchers and how we overcame the challenges. Research Involvement and Engagement, 2 (8), pp. 1-12
- Rycroft-Malone, Jo, Burton, Christopher R, Wilkinson, Joyce, Harvey, Gill, McCormack, Brendan, Baker, Richard, Dopson, Sue, Graham, Ian D., Staniszewska, Sophie, Thompson, Carl, Ariss, Steven, Melville-Richards, Lucy, Williams, Lynne, 2016. Collective action for implementation : a realist evaluation of organisational collaboration in healthcare. Implementation Science, 11 (1)
- Slutsky, Jean, Tumilty, Emma, Max, Cathering, Lu, Lanting, Tantivess, Sripen, Hauegen, Renata Curi, Whitty, Jennifer, Weale, Albert, Pearson, Steven, Tugendhaft, Aviva, Wang, Hufeng, Staniszewska, Sophie, Weerasuriya, Krisantha, Ahn, Jeonghoon, Cubillos, Leonardo, 2016. Patterns of public participation : opportunity structures and mobilization from a cross-national perspective. Journal of Health Organization and Management, 30 (5), pp. 751-768
- Bailey, Cara, Hewison, Alistair, Karasouli, Eleni, Staniszewska, Sophie, Munday, Daniel, 2016. Hospital care following emergency admission : a critical incident case study of the experiences of patients with advanced lung cancer and Chronic Obstructive Pulmonary Disease. Journal of Clinical Nursing, 25 (15-16), pp. 2168-2179
- Haywood, Kirstie L., Wilson, Roger, Staniszewska, Sophie, Salek, Sam, 2016. Using PROMs in healthcare. Who should be in the driving seat - policy makers, health professionals, methodologists or patients?. Patient: Patient-Centered Outcomes Research, 9 (6), pp. 495-498
- Croft, Charlotte, Currie, Graeme, Staniszewska, Sophie, 2016. Moving from rational to normative ideologies of control over public involvement : a case of continued managerial dominance. Social Science & Medicine, 162, pp. 124-132
- Jones, Emma Leanne, Williams-Yesson, Barbara Ann, Hackett, Rowland C., Staniszewska, Sophie, Evans, David, Francis, Nader Kamal, 2015. Quality of reporting on patient and public involvement within surgical research. Annals of Surgery, 261 (2), pp. 243-250
- Baranski, Anna, Churchill, Neil, Staniszewska, Sophie, 2015. Building national consensus on experiences of care. Patient Experience Journal, 2 (1), pp. 118-123
- Wilson, Patricia, Mathie, Elspeth, Keenan, Julia, McNeilly, Elaine, Goodman, Claire, Howe, Amanda, Poland, Fiona, Staniszewska, Sophie, Kendall, Sally, Munday, Diane, Cowe, Marion, Peckham, Stephen, 2015. ReseArch with patient and public invOlvement : a RealisT evaluation ? the RAPPORT study. Health Services and Delivery Research, 3 (38), pp. 1-176
- Sharma, Tarang, Choudhury, Moni, Kaur, Bindweep, Naidoo, Bhash, Garner, Sarah, Littlejohns, Peter, Staniszewska, Sophie, 2015. Evidence informed decision making : the use of 'colloquial evidence' at nice. International Journal of Technology Assessment in Health Care, 31 (3), pp. 138-146
- Stephens, Richard, Staniszewska, Sophie, 2015. One small step?. Research Involvement and Engagement, 1 (1)
- Hunt, Anne, Brown, Erica, Coad, Jane, Staniszewska, Sophie, Hacking, Suzanne, Chesworth, Brigit, Chambers, Lizzie, 2015. 'Why does it happen like this?' : consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families. Journal of Child Health Care, 19 (3), pp. 320-333
- Haywood, Kirstie L., Brett, Jo, Salek, Sam, Marlett, Nancy, Penman, Colin, Shklarov, Svetlana, Norris, Colleen, Santana, Maria Jose, Staniszewska, Sophie, 2015. Patient and public engagement in health-related quality of life and patient-reported outcomes research : what is important and why should we care? Findings from the first ISOQOL patient engagement symposium.. Quality of Life Research, 24 (5), pp. 1069-76
- Staniszewska, Sophie, Boardman, Felicity K., Gunn, Lee, Roberts, Julie, Clay, Diane, Seers, Kate, Brett, Jo, Avital, Liz, Bullock, Ian, O' Flynn, N., 2014. The Warwick patient experiences framework : patient-based evidence in clinical guidelines. International Journal for Quality in Health Care, 26 (2), pp. 151-157
- Brett, Jo, Staniszewska, Sophie, Mockford, Carole, Herron-Marx, Sandra, Hughes, John, Tysall, Colin, Suleman, Rashida, 2014. Mapping the impact of patient and public involvement on health and social care research : a systematic review. Health Expectations, 17 (5), pp. 637-650
- Mathie, Elspeth, Wilson, Patricia, Poland, Fiona, McNeilly, Elaine, Howe, Amanda, Staniszewska, Sophie, Cowe, Marion, Munday, Diane, Goodman, Claire, 2014. Consumer involvement in health research : a UK scoping and survey. International Journal of Consumer Studies, 38 (1), pp. 35-44
- Brett, Jo, Staniszewska, Sophie, Mockford, Carole, Herron-Marx, Sandra, Hughes, J. Carl, Tysall, Colin, Suleman, Rashida, 2014. A systematic review of the impact of patient and public involvement on service users, researchers and communities. The Patient - Patient-Centered Outcomes Research, 7 (4), pp. 387-395
- Staniszewska, Sophie, Thomas, Vicotria, Seers, Kate, 2013. Patient and public involvement in the implementation of evidence into practice. Evidence-Based Nursing, 16 (4)
- Avital, Liz, Carr, Eloise, Staniszewska, Sophie, 2013. A summary of the development of the NICE Patient experience in adult NHS services guidance and quality standard with a perspective of its relevance in a Canadian context. Journal of Education Nursing & Practice, 3 (9)
- Rycroft-Malone, J., Wilkinson, J., Burton, C. R., Harvey, Gill, McCormack, B., Graham, I., Staniszewska, Sophie, 2013. Collaborative action around implementation in Collaborations for Leadership in Applied Health Research and Care : towards a programme theory. Journal of Health Services Research & Policy, 18 (3 Supplement), pp. 13-26
- Haywood, Kirstie L., Staniszewska, Sophie, Chapman, Sarah, 2012. Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : a systematic review. Quality of Life Research, Vol.21 (No.1), pp. 35-52
- Mockford, Carole, Staniszewska, Sophie, Griffiths, Frances, Herron-Marx, Sandra, 2012. The impact of patient and public involvement on UK NHS health care : a systematic review. International Journal for Quality in Health Care, Vol.24 (No.1), pp. 28-38
- Staniszewska, Sophie, Brett, Jo, Redshaw, Maggie, Hamilton, Karen, Newburn, Mary, Jones, Nicola, Taylor, Lesley, 2012. The POPPY Study : developing a model of family-centred care for neonatal units. Worldviews on Evidence-Based Nursing, Vol.9 (No.4), pp. 243-255
- O'Flynn, N., Staniszewska, Sophie, 2012. Improving the experience of care for people using NHS services : summary of NICE guidance. BMJ, 344 (7851), pp. d6422-d6422
- Staniszewska, Sophie, Bullock, Ian, 2012. Can we help patients have a better experience? : Implementing NICE guidance on patient experience. Evidence-Based Nursing, 15 (4)
- Staniszewska, Sophie, Haywood, Kirstie L., Brett, Jo, Tutton, Liz, 2012. Patient and public involvement in patient-reported outcome measures. Patient: Patient-Centered Outcomes Research, Vol.5 (No.2), pp. 79-87
- Staniszewska, Sophie, Adebajo, Ade, Barber, Rosemary, Beresford, Peter, Brady, Louca-Mai, Brett, Jo, Elliott, J., Evans, David, Haywood, Kirstie L., Jones, D., Mockford, Carole, Nettle, Mary, Rose, Diana, Williamson, Tracey, 2011. Developing the evidence base of patient and public involvement in health and social care research : the case for measuring impact. International Journal of Consumer Studies, 35 (6), pp. 628-632
- Rycroft-Malone, Jo, Wilkinson, Joyce E., Burton, Christopher R., Andrews, Gavin J., Ariss, Steven, Baker, Richard, Dopson, Sue, Graham, Ian D., Harvey, Gill, Martin, Graham P., McCormack, Brendan, Staniszewska, Sophie, Thompson, Carl, DPhil, 2011. Implementing health research through academic and clinical partnerships : a realistic evaluation of the Collaborations for Leadership in Applied Health Research and Care (CLAHRC). Implementation Science, Vol.6 (No.1)
- Brett, Jo, Staniszewska, Sophie, Newburn, Mary, Jones, Nicola, Taylor, Lesley, 2011. A systematic mapping review of effective interventions for communicating with, supporting and providing information to parents of preterm infants. BMJ Open, Vol.1 (No.1)
- Staniszewska, Sophie, Brett, Jo, Mockford, Carole, Barber, Rosemary, 2011. The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research. International Journal of Technology Assessment in Health Care, Vol.27 (No.4), pp. 391-399
- Staniszewska, Sophie, Crowe, Sally, Badenoch, Douglas, Edwards, Carol, Savage, Jan, Norman, Will, 2010. The PRIME project : developing a patient evidence-base. Health Expectations, Vol.13 (No.3), pp. 312-322
- Staniszewska, Sophie, 2009. Patient and public involvement in health services and health research : a brief overview of evidence, policy and activity. Journal of Research in Nursing, 14 (4), pp. 295-298
- Wyke, Alexandra, Barby, Anne, Cowper, Andy, Lilleystone, Jo, Staniszewska, Sophie, Williams, Simon, 2008. What is ?quality of life' for patients?. British Journal of Healthcare Management, 14 (7), pp. 280-287
- Staniszewska, Sophie, Mockford, Carole, Gibson, A., Herron-Marx, Sandra, Putz, Rebecca, 2011. Moving forward: Understanding the negative experiences and impacts of patient and public involvement in health service planning, development and evaluation. Barnes, Marian; Cotterrell, Phil (eds.), Critical perspectives on user involvement, University of Bristol, Policy Press
- Seers, Kate, Tutton, Liz, Tierney, Stephanie, Mockford, Carole, Staniszewska, Sophie, Haywood, Kirstie L., 2016. Knowledge for change and improvement : developing partnership through involving and engaging others. RCN International Centenary conference, QEII Centre, 22?23 Nov 2016
- Hipwell, Alison, Staniszewska, Sophie, Gunn, L., 2015. Understanding the motivations and expectations of patient and public involvement advisors in health research : early indications from a qualitative interview study. Division of Health Psychology Annual Conference, Leicester, 2015, Published in Proceedings of the British Psychological Society
- 'Staniszewska, Sophie, 'Hickey, Gary, 'Coutts, Pippa, 'Thurman, Ben, 'Coldham, Tina, 2022. 'Co-production : a kind revolution. Research Involvement and Engagement, BioMed Central Ltd
- Seers, Kate, Staniszewska, Sophie, Tutton, Elizabeth, Watterson, L., Currie, L., 2016. A survey to provide baseline activity in relation to ward sister/charge nurse supervisory roles. Royal College of Nursing
- Staniszewska, Sophie, 2012. Taking the lead to improve patient experience. Commentary.. Membership magazine of the Royal College of Physicians, pp. 18-19
- Staniszewska, Sophie, Bullock, Ian, Avital, Liz, O'Flynn, N., 2012. Developing and implementing NICE guidance on patient experience. The Patient Experiences Portal
- Staniszewska, Sophie, 2012. Standards. Introducing the new quality standard for improving patient experiences in the NHS. Quality World : The Voice of the Quality Profession
- Staniszewska, Sophie, Boardman, Felicity K., Gunn, Lee, Palmer, Julie, Clay, Diane, Seers, Kate, Brett, Jo, 2011. Patient experiences : a scoping study. University of Warwick
- Brett, Jo, Staniszewska, Sophie, Mockford, Carole, Seers, Kate, Herron-Marx, Sandra, Bayliss, Helen, 2010. The PIRICOM study : a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. University of Warwick
- Mockford, Carole, Staniszewska, Sophie, Griffiths, Frances, Herron-Marx, Sandra, 2009. A systematic review of the impact of patient and public involvement on NHS healthcare services.
- Staniszewska, Sophie, Herron-Marx, Sandra, Mockford, Carole, 2008. Measuring the impact of patient and public involvement : the need for an evidence base. International Journal for Quality in Health Care, Oxford University Press, pp. 373-374
| Title | Funder | Award start | Award end |
|---|---|---|---|
| CONNECT: CO-productioN of an iNtervention using realist Evaluation to provide CommuniTy-based care for women and partners who have experienced a stillbirth or second trimester miscarriage (Fellowship for Becky MacGregor) | National Institute for Health Research (NIHR DoH) | 01 Oct 2023 | 30 Sept 2028 |
| NIHR Evidence Synthesis Group stage 2 | National Institute for Health Research (NIHR DoH) | 01 Apr 2023 | 31 Mar 2028 |
| NIHR HDRC Stage 2 lead by Coventry City Council: NIHR151356-Coventry Health Determinants Research Collboration | National Institute for Health Research (NIHR DoH) | 01 Oct 2022 | 30 Sept 2027 |
| Modelling of vaccination for public health: MEMVIE 3 | National Institute for Health Research (NIHR DoH) | 01 Sept 2023 | 31 Aug 2026 |
| Developing a role for patients and the public in the implementation of health and social care evidence into practice (re-submission of 67067) | National Institute for Health Research (NIHR DoH) | 01 Sept 2022 | 31 Oct 2025 |
| Developing an inclusive health research system: a realist evaluation of participation in health research with people of African-Caribbean heritage in the UK. | National Institute for Health Research (NIHR DoH) | 01 Apr 2022 | 31 Mar 2025 |
| NIHR HPRU in Gastrointestinal Infections | National Institute for Health Research (DoH) | 01 Apr 2020 | 31 Mar 2025 |
| HPRU in Genomics and Enabling at University of Warwick | National Institute for Health Research (DoH) | 01 Apr 2020 | 31 Mar 2025 |
| NIHR HSDR - Stage 2: Facilitating Access to CPR Training in High Risk Areas (FACT study) | National Institute for Health Research (NIHR DoH) | 01 Nov 2021 | 31 Jan 2025 |
| Re-evaluating the Remote: Exploring the practical, epistemological and ethical implications of remote qualitative data collection in health research | MRC | 01 May 2022 | 31 Oct 2024 |
| ARC 2018: NIHR Applied Research Collaborations | National Institute for Health Research (DoH) | 01 Oct 2019 | 30 Sept 2024 |
| Self management in people with POTs - BHF Training Fellowship for Helen Eftekhari) | British Heart Foundation | 28 Sept 2020 | 27 Sept 2024 |
| Developing Research Engagement for Happy Healthy Lives: Lead by CWPT | NHS England | 06 Nov 2023 | 05 Apr 2024 |
| Stillbirth and second trimester loss; community support for women | NIHR CRN West Midlands | 01 May 2022 | 30 Apr 2023 |
| Developing high quality commissioning of PPIE in NIHR via LGC grants management | LGC Group Holdings Ltd | 01 Oct 2020 | 31 Mar 2023 |
| Health Data Research UK: Patient and public involvement in reproducible machine learning in health data science: supporting trustworthy clinical insights | Health Data Research UK | 01 Apr 2020 | 31 Mar 2023 |
| Mathematical & Economic Modelling for Vaccination and Immunisation Evaluation, and Emergency Response (MEMVIE Part 2 Full application) | National Institute for Health Research (DoH) | 01 Nov 2019 | 31 Oct 2022 |
| Measuring & Understanding Multimorbidity using routine data in the UK (MUrMuR) - linked to HDRUK grant 56460 | Health Data Research UK | 01 Apr 2020 | 30 Sept 2021 |
| NIHR PDF 2015 - Peter Wall: SAFE-TKR study (Safety and feasibility evaluation of tourniquets for knee replacement study) | National Institute for Health Research (DoH) | 01 Jan 2016 | 31 Dec 2020 |
| NIHR HSDR via Imperial College London: Dementia project | National Institute for Health Research (DoH) | 01 Jul 2016 | 31 Dec 2018 |
| Centres for Leadership in Applied Health Research and Care West Midlands (CLAHRC WM), Theme 3 Prevention and Detection | Department of Health | 01 Jan 2014 | 31 Dec 2018 |
| CLAHRC West Midlands Theme 3 Funding - Sophie Staniszewska | National Institute for Health Research (DoH) | 01 Jan 2014 | 31 Dec 2018 |
| Evaluating the Use of Patient Experience Data to Improve the Quality of Inpatient Mental Health Care | National Institute for Health Research (DoH) | 01 Dec 2015 | 30 Nov 2018 |
| Infectious Disease Dynamic Modelling in Health Protection Subproject for Institution # 37779 | Department of Health | 01 Aug 2013 | 31 Jul 2018 |
| Infectious Disease Dynamic Modelling in Health Protection | Department of Health | 01 Aug 2013 | 31 Jul 2018 |
| Strategic alliance agreement - Royal College of Nursing | Royal College of Nursing | 01 Aug 2012 | 31 Jul 2017 |
| Understanding how supervisory Ward Sister status has been implemented and how its impact has been assessed. | NHS England | 01 Mar 2015 | 31 Oct 2015 |
| Carer and patient-led development of recommendations for people with dementia from hospital discharge to the community: understanding what is important | National Institute for Health Research (DoH) | 01 Sept 2013 | 31 Aug 2015 |
| Public involvement in research: a realist evaluation of approaches, processes and outcomes | National Institute for Health Research (DoH) | 01 Sept 2011 | 28 Feb 2014 |
| Evaluating CLARHCS in Action | NHS Service Delivery and Organisation | 01 Sept 2009 | 28 Feb 2014 |
| Establishing a Research Forum in the Birmingham Children in Care Council | Birmingham Community Healthcare NHS Trust | 01 Apr 2012 | 31 Mar 2013 |
| Subproject for Institution # 33212 | Birmingham Community Healthcare NHS Trust | 01 Apr 2012 | 31 Mar 2013 |
| Public Engagement with Research Online: Embedding impact analysis good practice through integrated web-based linguistic and quantitative analysis solutions | Joint Information Systems Committee | 01 Jun 2012 | 30 Nov 2012 |
| Subproject for Institution # 32931 | Joint Information Systems Committee | 01 May 2012 | 31 Oct 2012 |
| The big study for life limited children and their families | Big Lottery Fund | 18 Aug 2010 | 17 Aug 2012 |
| Exploring, understanding and reducing emergency cancer admissions (EURECA) | Macmillan Cancer Support | 01 Jan 2010 | 31 Dec 2011 |
| NICE Scoping Study | National Institute for Health and Clinical Excellence | 01 Dec 2010 | 31 Jan 2011 |
| A Structured Review of Evidence on Conceptualisation, Measurement, Impact and Outcomes of Patient and Public Involvement in Health and Social Care Research | UK Clinical research Collaboration (UKCRC) | 24 Nov 2008 | 30 Nov 2009 |
| Seminar Series - Exploring the Impact of Public Involvement: Understanding the Role of Theory, Practice and Culture | ESRC | 01 Nov 2008 | 30 Nov 2009 |
| The experiences of parents with pre-term babies: Identifying interventions for communications, information and support | National Childbirth Trust | 01 Jul 2007 | 31 Dec 2008 |
| Supplement request: The experiences of parents with pre-term babies - Identifying interventions for communcations, information and support | National Childbirth Trust | 01 Jul 2007 | 31 Dec 2008 |